A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]

M. P. Eccles, R. Foy, C. H. Bamford, J. C. Hughes, Marie Johnston, P. M. Whitty, N. Steen

Research output: Contribution to journalArticle

8 Citations (Scopus)

Abstract

Background
For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither routine nor inevitable, and there is wide variation in the practice of disclosure. The aim of this study is to develop a tailored theory-based intervention to promote appropriate disclosure of diagnosis of dementia.

Methods
There are three objectives. Objective 1 is to define and develop an appropriate model of disclosure; this will be addressed using a multidisciplinary consensus development process. Objective 2 is to identify factors that influence disclosure of diagnosis; a questionnaire based upon theoretical constructs from a range of behavioural theories will be developed and members of old age mental health teams will be surveyed. The analysis will identify those factors that best predict intention to disclose a diagnosis to a person with dementia. Objective 3 is to develop and pilot test a theory-based intervention to promote disclosure of diagnosis that targets attitudes, beliefs and actions most amenable to change. Objective 3 will use the results of Objectives 1&2 to design and pilot test an intervention to improve the process of and increase the proportion of individuals receiving a diagnosis of dementia, for members of old age mental health teams. This work will lead to a proposal for a randomised controlled trial of the intervention.

Original languageEnglish
Pages (from-to)7
JournalImplementation Science
Volume1
DOIs
Publication statusPublished - 2006

Fingerprint

Professional Practice
Disclosure
Dementia
Mental Health
Caregivers
Consensus
Randomized Controlled Trials

Cite this

A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia : Study protocol [ISRCTN15871014]. / Eccles, M. P.; Foy, R.; Bamford, C. H.; Hughes, J. C.; Johnston, Marie; Whitty, P. M.; Steen, N.

In: Implementation Science, Vol. 1, 2006, p. 7.

Research output: Contribution to journalArticle

@article{3c9878b2c811430cb8ceaaece5daca9e,
title = "A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]",
abstract = "Background For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither routine nor inevitable, and there is wide variation in the practice of disclosure. The aim of this study is to develop a tailored theory-based intervention to promote appropriate disclosure of diagnosis of dementia. Methods There are three objectives. Objective 1 is to define and develop an appropriate model of disclosure; this will be addressed using a multidisciplinary consensus development process. Objective 2 is to identify factors that influence disclosure of diagnosis; a questionnaire based upon theoretical constructs from a range of behavioural theories will be developed and members of old age mental health teams will be surveyed. The analysis will identify those factors that best predict intention to disclose a diagnosis to a person with dementia. Objective 3 is to develop and pilot test a theory-based intervention to promote disclosure of diagnosis that targets attitudes, beliefs and actions most amenable to change. Objective 3 will use the results of Objectives 1&2 to design and pilot test an intervention to improve the process of and increase the proportion of individuals receiving a diagnosis of dementia, for members of old age mental health teams. This work will lead to a proposal for a randomised controlled trial of the intervention.",
author = "Eccles, {M. P.} and R. Foy and Bamford, {C. H.} and Hughes, {J. C.} and Marie Johnston and Whitty, {P. M.} and N. Steen",
year = "2006",
doi = "10.1186/1748-5908-1-7",
language = "English",
volume = "1",
pages = "7",
journal = "Implementation Science",
issn = "1748-5908",
publisher = "BioMed Central",

}

TY - JOUR

T1 - A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia

T2 - Study protocol [ISRCTN15871014]

AU - Eccles, M. P.

AU - Foy, R.

AU - Bamford, C. H.

AU - Hughes, J. C.

AU - Johnston, Marie

AU - Whitty, P. M.

AU - Steen, N.

PY - 2006

Y1 - 2006

N2 - Background For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither routine nor inevitable, and there is wide variation in the practice of disclosure. The aim of this study is to develop a tailored theory-based intervention to promote appropriate disclosure of diagnosis of dementia. Methods There are three objectives. Objective 1 is to define and develop an appropriate model of disclosure; this will be addressed using a multidisciplinary consensus development process. Objective 2 is to identify factors that influence disclosure of diagnosis; a questionnaire based upon theoretical constructs from a range of behavioural theories will be developed and members of old age mental health teams will be surveyed. The analysis will identify those factors that best predict intention to disclose a diagnosis to a person with dementia. Objective 3 is to develop and pilot test a theory-based intervention to promote disclosure of diagnosis that targets attitudes, beliefs and actions most amenable to change. Objective 3 will use the results of Objectives 1&2 to design and pilot test an intervention to improve the process of and increase the proportion of individuals receiving a diagnosis of dementia, for members of old age mental health teams. This work will lead to a proposal for a randomised controlled trial of the intervention.

AB - Background For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither routine nor inevitable, and there is wide variation in the practice of disclosure. The aim of this study is to develop a tailored theory-based intervention to promote appropriate disclosure of diagnosis of dementia. Methods There are three objectives. Objective 1 is to define and develop an appropriate model of disclosure; this will be addressed using a multidisciplinary consensus development process. Objective 2 is to identify factors that influence disclosure of diagnosis; a questionnaire based upon theoretical constructs from a range of behavioural theories will be developed and members of old age mental health teams will be surveyed. The analysis will identify those factors that best predict intention to disclose a diagnosis to a person with dementia. Objective 3 is to develop and pilot test a theory-based intervention to promote disclosure of diagnosis that targets attitudes, beliefs and actions most amenable to change. Objective 3 will use the results of Objectives 1&2 to design and pilot test an intervention to improve the process of and increase the proportion of individuals receiving a diagnosis of dementia, for members of old age mental health teams. This work will lead to a proposal for a randomised controlled trial of the intervention.

U2 - 10.1186/1748-5908-1-7

DO - 10.1186/1748-5908-1-7

M3 - Article

VL - 1

SP - 7

JO - Implementation Science

JF - Implementation Science

SN - 1748-5908

ER -