Community perspectives on HIV, violence and health surveillance in rural South Africa

a participatory pilot study

Nitya Hullur, Lucia D'Ambruoso (Corresponding Author), Kerstin Edin, Ryan G. Wagner, Sizzy Ngobeni, Kathleen Kahn, Stephen Tollman, Peter Byass

Research output: Contribution to journalArticle

5 Citations (Scopus)
4 Downloads (Pure)

Abstract

Background: South Africa faces a complex burden of disease consisting of infectious and non–communicable conditions, injury and interpersonal violence, and maternal and child mortality. Inequalities in income and opportunity push disease burdens towards vulnerable populations, a situation to which the health system struggles to respond. There is an urgent need for health planning to account for the needs of marginalized groups in this context. The study objectives were to develop a process to elicit the perspectives of local communities in the established Agincourt health and socio-demographic surveillance site (HDSS) in rural north–east South Africa on two leading causes of death: HIV/AIDS and violent assault, and on health surveillance as a means to generate information on health in the locality.

Methods: Drawing on community–based participatory research (CBPR) methods, three village–based groups of eight participants
were convened, with whom a series of discussions were held to identify and define the causes of, treatments for, and problems surrounding, deaths due to HIV/AIDS and violent assault. The surveillance system was also discussed and recommendations generated. The discussion narratives were the main data source, examined using framework analysis.

Results: The groups identified a range of social and health systems issues including risky sexual health behaviors, entrenched traditional practices, alcohol and substance abuse, unstable relationships, and debt as causative. Participants also explained how compromised patient confidentiality in clinics, insensitive staff, and a biased judicial system were problematic for the treatment and reporting of both conditions. Views on health surveillance were positive. Recommendations to strengthen an already well–functioning system related to maintaining confidentiality and sensitivity, and extending ancillary care obligations.

Conclusion: The discussions provided information not available from other sources on the social and health systems processes through which access to good quality health care is constrained in this setting. On this basis, further CBPR in routine HDSS to extend partnerships between researchers, communities and health authorities to connect evidence with the means for action is underway
Original languageEnglish
Article number010406
Pages (from-to)1-12
Number of pages12
JournalJournal of Global Health
Volume6
Issue number1
Early online date28 Feb 2016
DOIs
Publication statusPublished - Jun 2016

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South Africa
Violence
HIV
Health
Confidentiality
Acquired Immunodeficiency Syndrome
Demography
Child Mortality
Health Planning
Maternal Mortality
Quality of Health Care
Information Storage and Retrieval
Reproductive Health
Health Behavior
Vulnerable Populations
Research
Sexual Behavior
Alcoholism
Substance-Related Disorders
Communicable Diseases

Cite this

Community perspectives on HIV, violence and health surveillance in rural South Africa : a participatory pilot study. / Hullur, Nitya; D'Ambruoso, Lucia (Corresponding Author); Edin, Kerstin; Wagner, Ryan G.; Ngobeni, Sizzy; Kahn, Kathleen; Tollman, Stephen; Byass, Peter.

In: Journal of Global Health, Vol. 6, No. 1, 010406, 06.2016, p. 1-12.

Research output: Contribution to journalArticle

Hullur, Nitya ; D'Ambruoso, Lucia ; Edin, Kerstin ; Wagner, Ryan G. ; Ngobeni, Sizzy ; Kahn, Kathleen ; Tollman, Stephen ; Byass, Peter. / Community perspectives on HIV, violence and health surveillance in rural South Africa : a participatory pilot study. In: Journal of Global Health. 2016 ; Vol. 6, No. 1. pp. 1-12.
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AU - Hullur, Nitya

AU - D'Ambruoso, Lucia

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AU - Ngobeni, Sizzy

AU - Kahn, Kathleen

AU - Tollman, Stephen

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N1 - Acknowledgements: The authors would like to acknowledge the study participants who contributed time and information and made significant contributions to the analysis, and the staff at the MRC/Wits Rural Public Health and Health Transitions Research Unit (Agincourt), School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa. Funding: The analysis presented in this paper is supported by Health Systems Research Initiative Development Grant from DFID/MRC/Wellcome Trust/ESRC (MR/N005597/1). The fieldwork was completed with the Umeå Centre for Global Health Research, with support from FORTE: Swedish Council for Health, Working Life and Welfare (grant No. 2006–1512). The Agincourt HDSS is supported by the School of Public Health, University of the Witwatersrand, South African Medical Research Council and the Wellcome Trust, UK (Grants 058893/Z/99/A; 069683/Z/02/Z; 085477/Z/08/Z; 085477/B/08/Z)

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N2 - Background: South Africa faces a complex burden of disease consisting of infectious and non–communicable conditions, injury and interpersonal violence, and maternal and child mortality. Inequalities in income and opportunity push disease burdens towards vulnerable populations, a situation to which the health system struggles to respond. There is an urgent need for health planning to account for the needs of marginalized groups in this context. The study objectives were to develop a process to elicit the perspectives of local communities in the established Agincourt health and socio-demographic surveillance site (HDSS) in rural north–east South Africa on two leading causes of death: HIV/AIDS and violent assault, and on health surveillance as a means to generate information on health in the locality. Methods: Drawing on community–based participatory research (CBPR) methods, three village–based groups of eight participantswere convened, with whom a series of discussions were held to identify and define the causes of, treatments for, and problems surrounding, deaths due to HIV/AIDS and violent assault. The surveillance system was also discussed and recommendations generated. The discussion narratives were the main data source, examined using framework analysis.Results: The groups identified a range of social and health systems issues including risky sexual health behaviors, entrenched traditional practices, alcohol and substance abuse, unstable relationships, and debt as causative. Participants also explained how compromised patient confidentiality in clinics, insensitive staff, and a biased judicial system were problematic for the treatment and reporting of both conditions. Views on health surveillance were positive. Recommendations to strengthen an already well–functioning system related to maintaining confidentiality and sensitivity, and extending ancillary care obligations. Conclusion: The discussions provided information not available from other sources on the social and health systems processes through which access to good quality health care is constrained in this setting. On this basis, further CBPR in routine HDSS to extend partnerships between researchers, communities and health authorities to connect evidence with the means for action is underway

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