TY - JOUR
T1 - Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research
AU - Aitken, Mhairi
AU - Tully, Mary P
AU - Porteous, Carol
AU - Denegri, Simon
AU - Cunningham-Burley, Sarah
AU - Banner, Natalie
AU - Black, Corri
AU - Burgess, Michael
AU - Cross, Lynsey
AU - van Delden, Johannes Jm
AU - Ford, Elizabeth
AU - Fox, Sarah
AU - Fitzpatrick, Natalie K
AU - Gallacher, Kay
AU - Goddard, Catharine
AU - Hassan, Lamiece
AU - Jamieson, Ron
AU - Jones, Kerina H
AU - Kaarakainen, Minna
AU - Lugg-Widger, Fiona
AU - McGrail, Kimberlyn
AU - McKenzie, Anne
AU - Moran, Rosalyn
AU - Murtagh, Madeleine J
AU - Oswald, Malcolm
AU - Paprica, Alison
AU - Perrin, Nicola
AU - Richards, Emma Victoria
AU - Rouse, John
AU - Webb, Joanne
AU - Willison, Donald J
N1 - Funding Statement
This project was funded by The Farr Institute of Health Informatics Research. The Farr Institute was supported by a 10-funder consortium: Arthritis Research UK, the British Heart Foundation, Cancer Research UK, the Economic and Social Research Council, the Engineering and Physical Sciences Research Council, the Medical Research Council, the National Institute of Health Research, the National Institute for Social Care and Health Research (Welsh Assembly Government), the Chief Scientist Office (Scottish Government Health Directorates), the Wellcome Trust, (MRC Grant No: MR/M501633/2).
PY - 2019/2/12
Y1 - 2019/2/12
N2 - This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.
Our key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.
AB - This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.
Our key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.
U2 - 10.23889/ijpds.v4i1.586
DO - 10.23889/ijpds.v4i1.586
M3 - Article
C2 - 34095528
VL - 4
SP - 586
JO - International Journal of Population Data Science
JF - International Journal of Population Data Science
SN - 2399-4908
IS - 1
ER -