Consumer involvement in research projects: the activities of research funders

Maire O'Donnell, Vikki Entwistle

Research output: Contribution to journalArticlepeer-review

38 Citations (Scopus)


This paper reports findings from a postal questionnaire survey and in-depth interviews with UK funders of health-related research that explored whether, why and how they promote consumer involvement in research projects.

Many UK funders of health-related research are adopting a policy of promoting consumer involvement in research projects. Telephone interviews revealed they have several reasons for doing so, and that they vary in the ways they encourage and support researchers to involve consumers. For some, descriptions of consumer involvement in a research proposal are important for project funding decisions. They recognized a need for flexibility when assessing consumer involvement in different contexts.

We suggest that funders should continue to work to clarify what they consider to be the parameters of acceptability in terms of consumer involvement and ensure that 'flexible' criteria are fairly applied. Researchers should be aware of particular funders' views when applying for project funding. (C) 2004 Elsevier Ireland Ltd. All rights reserved.

Original languageEnglish
Pages (from-to)229-238
Number of pages9
JournalHealth Policy
Issue number2
Early online date14 Mar 2004
Publication statusPublished - Aug 2004


  • consumer involvement
  • health research
  • research funding

Cite this