Development of a UK core dataset for geriatric medicine research:: a position statement and results from a Delphi consensus process

Carly Welch; Daisy Wilson; Avan A. Sayer; Miles D. Witham; Thomas A. Jackson; Raj Rajkumar; Jugdeep Dhesi; Mary Ni Lochlainn; Terry Aspray; Richard Dodds; James Frith; Sarah Richardson; Ellen Tullo; Alison Yarnall; Richard Walker; Emma Cunningham; Josephine Prynn; Harnish Patel; Divya Tiwari; Stephen Makin; Phyo Myint; Emily Henderson; Victoria Keevil; Katherine Walesby; Louise Allan; Jane Masoli; Terry Quinn; Andrew P. Clegg; Matthew Hale; Simon Conroy; Joanne Taylor; John Gladman; Adam Gordon; Rowan Harwood; Natalie Cox; Helen Roberts; on behalf of the UK Geriatric Medicine Core Dataset Extended Working Group

doi:10.1186/s12877-023-03805-5

Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Carly Welch, Daisy Wilson, Avan A. Sayer, Miles D. Witham, Thomas A. Jackson, Raj Rajkumar, Jugdeep Dhesi, Mary Ni Lochlainn, Terry Aspray, Richard Dodds, James Frith, Sarah Richardson, Ellen Tullo, Alison Yarnall, Richard Walker, Emma Cunningham, Josephine Prynn, Harnish Patel, Divya Tiwari, Stephen MakinPhyo Myint, Emily Henderson, Victoria Keevil, Katherine Walesby, Louise Allan, Jane Masoli, Terry Quinn, Andrew P. Clegg, Matthew Hale, Simon Conroy, Joanne Taylor, John Gladman, Adam Gordon, Rowan Harwood, Natalie Cox, Helen Roberts, on behalf of the UK Geriatric Medicine Core Dataset Extended Working Group

Research output: Contribution to journal › Article › peer-review

Abstract

Background
There is lack of standardisation in assessment tools used in geriatric medicine research, which makes
pooling of data and cross-study comparisons difcult.
Methods
We conducted a modifed Delphi process to establish measures to be included within core and extended
datasets for geriatric medicine research in the United Kingdom (UK). This included three complete questionnaire
rounds, and one consensus meeting. Participants were selected from attendance at the NIHR Newcastle Biomedical
Research Centre meeting, May 2019, and academic geriatric medicine e-mailing lists. Literature review was used to
develop the initial questionnaire, with all responses then included in the second questionnaire. The third questionnaire used refned options from the second questionnaire with response ranking.
Results
Ninety-eight responses were obtained across all questionnaire rounds (Initial: 19, Second: 21, Third: 58)
from experienced and early career researchers in geriatric medicine. The initial questionnaire included 18 questions
with short text responses, including one question for responders to suggest additional items. Twenty-six questions
were included in the second questionnaire, with 108 within category options. The third questionnaire included three
ranking, seven fnal agreement, and four binary option questions. Results were discussed at the consensus meeting.
In our position statement, the fnal consensus dataset includes six core domains: demographics (age, gender, ethnicity, socioeconomic status), specifed morbidities, functional ability (Barthel and/or Nottingham Extended Activities of
Daily Living), Clinical Frailty Scale (CFS), cognition, and patient-reported outcome measures (dependent on research
question). We also propose how additional variables should be measured within an extended dataset.
Conclusions
Our core and extended datasets represent current consensus opinion of academic geriatric medicine
clinicians across the UK. We consider the development and further use of these datasets will strengthen collaboration
between researchers and academic institutions.

Original language	English
Number of pages	11
Journal	BMC Geriatrics
Volume	23
Issue number	168
DOIs	https://doi.org/10.1186/s12877-023-03805-5
Publication status	Published - 23 Mar 2023

Keywords

Minimum dataset
Frailty
ADL
CFS
Barthel

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Welch, C., Wilson, D., Sayer, A. A., Witham, M. D., Jackson, T. A., Rajkumar, R., Dhesi, J., Lochlainn, M. N., Aspray, T., Dodds, R., Frith, J., Richardson, S., Tullo, E., Yarnall, A., Walker, R., Cunningham, E., Prynn, J., Patel, H., Tiwari, D., ... Group, O. B. O. T. UK. G. M. C. D. E. W. (2023). Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process. BMC Geriatrics, 23(168). https://doi.org/10.1186/s12877-023-03805-5

Welch, C, Wilson, D, Sayer, AA, Witham, MD, Jackson, TA, Rajkumar, R, Dhesi, J, Lochlainn, MN, Aspray, T, Dodds, R, Frith, J, Richardson, S, Tullo, E, Yarnall, A, Walker, R, Cunningham, E, Prynn, J, Patel, H, Tiwari, D, Makin, S , Myint, P, Henderson, E, Keevil, V, Walesby, K, Allan, L, Masoli, J, Quinn, T, Clegg, AP, Hale, M, Conroy, S, Taylor, J, Gladman, J, Gordon, A, Harwood, R, Cox, N, Roberts, H & Group, OBOTUKGMCDEW 2023, 'Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process', BMC Geriatrics, vol. 23, no. 168. https://doi.org/10.1186/s12877-023-03805-5

@article{9c3a6cc90fce49398a175032e6415b74,

title = "Development of a UK core dataset for geriatric medicine research:: a position statement and results from a Delphi consensus process",

abstract = "Background There is lack of standardisation in assessment tools used in geriatric medicine research, which makes pooling of data and cross-study comparisons difcult.Methods We conducted a modifed Delphi process to establish measures to be included within core and extended datasets for geriatric medicine research in the United Kingdom (UK). This included three complete questionnaire rounds, and one consensus meeting. Participants were selected from attendance at the NIHR Newcastle Biomedical Research Centre meeting, May 2019, and academic geriatric medicine e-mailing lists. Literature review was used to develop the initial questionnaire, with all responses then included in the second questionnaire. The third questionnaire used refned options from the second questionnaire with response ranking.Results Ninety-eight responses were obtained across all questionnaire rounds (Initial: 19, Second: 21, Third: 58) from experienced and early career researchers in geriatric medicine. The initial questionnaire included 18 questions with short text responses, including one question for responders to suggest additional items. Twenty-six questions were included in the second questionnaire, with 108 within category options. The third questionnaire included three ranking, seven fnal agreement, and four binary option questions. Results were discussed at the consensus meeting. In our position statement, the fnal consensus dataset includes six core domains: demographics (age, gender, ethnicity, socioeconomic status), specifed morbidities, functional ability (Barthel and/or Nottingham Extended Activities of Daily Living), Clinical Frailty Scale (CFS), cognition, and patient-reported outcome measures (dependent on research question). We also propose how additional variables should be measured within an extended dataset.Conclusions Our core and extended datasets represent current consensus opinion of academic geriatric medicine clinicians across the UK. We consider the development and further use of these datasets will strengthen collaboration between researchers and academic institutions.",

keywords = "Minimum dataset, Frailty, ADL, CFS, Barthel",

author = "Carly Welch and Daisy Wilson and Sayer, {Avan A.} and Witham, {Miles D.} and Jackson, {Thomas A.} and Raj Rajkumar and Jugdeep Dhesi and Lochlainn, {Mary Ni} and Terry Aspray and Richard Dodds and James Frith and Sarah Richardson and Ellen Tullo and Alison Yarnall and Richard Walker and Emma Cunningham and Josephine Prynn and Harnish Patel and Divya Tiwari and Stephen Makin and Phyo Myint and Emily Henderson and Victoria Keevil and Katherine Walesby and Louise Allan and Jane Masoli and Terry Quinn and Clegg, {Andrew P.} and Matthew Hale and Simon Conroy and Joanne Taylor and John Gladman and Adam Gordon and Rowan Harwood and Natalie Cox and Helen Roberts and Group, {on behalf of the UK Geriatric Medicine Core Dataset Extended Working}",

note = "Funding AS and MW are funded by the Newcastle National Institute for Health (NIHR) Biomedical Research Centre, which also funded the initial meeting of academic clinicians in geriatric medicine during the Delphi process. The views expressed in this article are those of the authors and not necessarily those of the NIHR, the NHS, or the Department of Health. Acknowledgements The authors acknowledge the contributions of members of the UK Geriatric Medicine Core Dataset Extended Working Group.",

year = "2023",

month = mar,

day = "23",

doi = "10.1186/s12877-023-03805-5",

language = "English",

volume = "23",

journal = "BMC Geriatrics",

issn = "1471-2318",

publisher = "BioMed Central",

number = "168",

}

TY - JOUR

T1 - Development of a UK core dataset for geriatric medicine research:

T2 - a position statement and results from a Delphi consensus process

AU - Welch, Carly

AU - Wilson, Daisy

AU - Sayer, Avan A.

AU - Witham, Miles D.

AU - Jackson, Thomas A.

AU - Rajkumar, Raj

AU - Dhesi, Jugdeep

AU - Lochlainn, Mary Ni

AU - Aspray, Terry

AU - Dodds, Richard

AU - Frith, James

AU - Richardson, Sarah

AU - Tullo, Ellen

AU - Yarnall, Alison

AU - Walker, Richard

AU - Cunningham, Emma

AU - Prynn, Josephine

AU - Patel, Harnish

AU - Tiwari, Divya

AU - Makin, Stephen

AU - Myint, Phyo

AU - Henderson, Emily

AU - Keevil, Victoria

AU - Walesby, Katherine

AU - Allan, Louise

AU - Masoli, Jane

AU - Quinn, Terry

AU - Clegg, Andrew P.

AU - Hale, Matthew

AU - Conroy, Simon

AU - Taylor, Joanne

AU - Gladman, John

AU - Gordon, Adam

AU - Harwood, Rowan

AU - Cox, Natalie

AU - Roberts, Helen

AU - Group, on behalf of the UK Geriatric Medicine Core Dataset Extended Working

N1 - Funding AS and MW are funded by the Newcastle National Institute for Health (NIHR) Biomedical Research Centre, which also funded the initial meeting of academic clinicians in geriatric medicine during the Delphi process. The views expressed in this article are those of the authors and not necessarily those of the NIHR, the NHS, or the Department of Health. Acknowledgements The authors acknowledge the contributions of members of the UK Geriatric Medicine Core Dataset Extended Working Group.

PY - 2023/3/23

Y1 - 2023/3/23

N2 - Background There is lack of standardisation in assessment tools used in geriatric medicine research, which makes pooling of data and cross-study comparisons difcult.Methods We conducted a modifed Delphi process to establish measures to be included within core and extended datasets for geriatric medicine research in the United Kingdom (UK). This included three complete questionnaire rounds, and one consensus meeting. Participants were selected from attendance at the NIHR Newcastle Biomedical Research Centre meeting, May 2019, and academic geriatric medicine e-mailing lists. Literature review was used to develop the initial questionnaire, with all responses then included in the second questionnaire. The third questionnaire used refned options from the second questionnaire with response ranking.Results Ninety-eight responses were obtained across all questionnaire rounds (Initial: 19, Second: 21, Third: 58) from experienced and early career researchers in geriatric medicine. The initial questionnaire included 18 questions with short text responses, including one question for responders to suggest additional items. Twenty-six questions were included in the second questionnaire, with 108 within category options. The third questionnaire included three ranking, seven fnal agreement, and four binary option questions. Results were discussed at the consensus meeting. In our position statement, the fnal consensus dataset includes six core domains: demographics (age, gender, ethnicity, socioeconomic status), specifed morbidities, functional ability (Barthel and/or Nottingham Extended Activities of Daily Living), Clinical Frailty Scale (CFS), cognition, and patient-reported outcome measures (dependent on research question). We also propose how additional variables should be measured within an extended dataset.Conclusions Our core and extended datasets represent current consensus opinion of academic geriatric medicine clinicians across the UK. We consider the development and further use of these datasets will strengthen collaboration between researchers and academic institutions.

AB - Background There is lack of standardisation in assessment tools used in geriatric medicine research, which makes pooling of data and cross-study comparisons difcult.Methods We conducted a modifed Delphi process to establish measures to be included within core and extended datasets for geriatric medicine research in the United Kingdom (UK). This included three complete questionnaire rounds, and one consensus meeting. Participants were selected from attendance at the NIHR Newcastle Biomedical Research Centre meeting, May 2019, and academic geriatric medicine e-mailing lists. Literature review was used to develop the initial questionnaire, with all responses then included in the second questionnaire. The third questionnaire used refned options from the second questionnaire with response ranking.Results Ninety-eight responses were obtained across all questionnaire rounds (Initial: 19, Second: 21, Third: 58) from experienced and early career researchers in geriatric medicine. The initial questionnaire included 18 questions with short text responses, including one question for responders to suggest additional items. Twenty-six questions were included in the second questionnaire, with 108 within category options. The third questionnaire included three ranking, seven fnal agreement, and four binary option questions. Results were discussed at the consensus meeting. In our position statement, the fnal consensus dataset includes six core domains: demographics (age, gender, ethnicity, socioeconomic status), specifed morbidities, functional ability (Barthel and/or Nottingham Extended Activities of Daily Living), Clinical Frailty Scale (CFS), cognition, and patient-reported outcome measures (dependent on research question). We also propose how additional variables should be measured within an extended dataset.Conclusions Our core and extended datasets represent current consensus opinion of academic geriatric medicine clinicians across the UK. We consider the development and further use of these datasets will strengthen collaboration between researchers and academic institutions.

KW - Minimum dataset

KW - Frailty

KW - ADL

KW - CFS

KW - Barthel

U2 - 10.1186/s12877-023-03805-5

DO - 10.1186/s12877-023-03805-5

M3 - Article

VL - 23

JO - BMC Geriatrics

JF - BMC Geriatrics

SN - 1471-2318

IS - 168

ER -

Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Abstract

Keywords

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