Empirical relationships between health literacy and treatment decision making: A scoping review of the literature

Leslie J Malloy-Weir; Cathy Charles; Amiram Gafni; Vikki A Entwistle

doi:10.1016/j.pec.2014.11.004

Empirical relationships between health literacy and treatment decision making: A scoping review of the literature

Leslie J Malloy-Weir, Cathy Charles, Amiram Gafni, Vikki A Entwistle

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Abstract

OBJECTIVES: This study asked: What is known from the existing literature about the empirical relationships between health literacy (HL) and the three stages of the treatment decision making (TDM) process: information exchange, deliberation, and deciding on the treatment to implement?

METHODS: A scoping review of the literature was conducted. Four databases were searched and a total of 2772 records were returned. After de-duplication and three levels of relevance screening, 41 primary studies were included.

RESULTS: Relationships between HL and information exchange were studied more often than relationships between HL and deliberation and deciding on the treatment to implement. Across the 41 studies, there was little overlap in terms the measure(s) of HL adopted, the aspect of TDM considered, and the characteristics of the study populations - making comparisons of the findings difficult. Multiple knowledge gaps and measurement-related problems were identified; including, the possibility that the process of TDM influences HL.

CONCLUSION: The importance of HL to the three stages of TDM is unclear because of the knowledge gaps and measurement-related problems that exist.

PRACTICE IMPLICATIONS: There are many uncertainties about how TDM, or the design and use of patient decision aids, should respond to patients with different levels of HL.

Original language	English
Pages (from-to)	296-309
Number of pages	14
Journal	Patient Education and Counseling
Volume	98
Issue number	3
Early online date	8 Dec 2014
DOIs	https://doi.org/10.1016/j.pec.2014.11.004
Publication status	Published - Mar 2015

Keywords

health literacy
treatment decision making
shared decision making
patient decision aids

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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Malloy-Weir2014
NOTICE: this is the author’s version of a work that was accepted for publication in Patient Education and Counseling. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Patient Education and Counseling, VOL 98, ISSUE 3, (2015) DOI: 10.1016/j.pec.2014.11.004
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Cite this

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title = "Empirical relationships between health literacy and treatment decision making: A scoping review of the literature",

abstract = "OBJECTIVES: This study asked: What is known from the existing literature about the empirical relationships between health literacy (HL) and the three stages of the treatment decision making (TDM) process: information exchange, deliberation, and deciding on the treatment to implement?METHODS: A scoping review of the literature was conducted. Four databases were searched and a total of 2772 records were returned. After de-duplication and three levels of relevance screening, 41 primary studies were included.RESULTS: Relationships between HL and information exchange were studied more often than relationships between HL and deliberation and deciding on the treatment to implement. Across the 41 studies, there was little overlap in terms the measure(s) of HL adopted, the aspect of TDM considered, and the characteristics of the study populations - making comparisons of the findings difficult. Multiple knowledge gaps and measurement-related problems were identified; including, the possibility that the process of TDM influences HL.CONCLUSION: The importance of HL to the three stages of TDM is unclear because of the knowledge gaps and measurement-related problems that exist.PRACTICE IMPLICATIONS: There are many uncertainties about how TDM, or the design and use of patient decision aids, should respond to patients with different levels of HL.",

keywords = "health literacy, treatment decision making, shared decision making, patient decision aids",

author = "Malloy-Weir, {Leslie J} and Cathy Charles and Amiram Gafni and Entwistle, {Vikki A}",

note = "Copyright {\textcopyright} 2014 Elsevier Ireland Ltd. All rights reserved. Acknowledgements This research was supported by a Joseph Armand Bombardier Doctoral Scholarship awarded to Leslie J. Malloy-Weir by the Social Sciences and Humanities Research Council of Canada. The authors would like to thank Maureen Rice for her help with the literature search strategy and Dr. Malcolm Weir for his help with the relevance screening.",

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N1 - Copyright © 2014 Elsevier Ireland Ltd. All rights reserved. Acknowledgements This research was supported by a Joseph Armand Bombardier Doctoral Scholarship awarded to Leslie J. Malloy-Weir by the Social Sciences and Humanities Research Council of Canada. The authors would like to thank Maureen Rice for her help with the literature search strategy and Dr. Malcolm Weir for his help with the relevance screening.

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Empirical relationships between health literacy and treatment decision making: A scoping review of the literature

Abstract

Keywords

UN SDGs

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