TY - JOUR
T1 - Empirical relationships between health literacy and treatment decision making
T2 - A scoping review of the literature
AU - Malloy-Weir, Leslie J
AU - Charles, Cathy
AU - Gafni, Amiram
AU - Entwistle, Vikki A
N1 - Copyright © 2014 Elsevier Ireland Ltd. All rights reserved.
Acknowledgements
This research was supported by a Joseph Armand Bombardier Doctoral Scholarship awarded to Leslie J. Malloy-Weir by the Social Sciences and Humanities Research Council of Canada.
The authors would like to thank Maureen Rice for her help with the literature search strategy and Dr. Malcolm Weir for his help with the relevance screening.
PY - 2015/3
Y1 - 2015/3
N2 - OBJECTIVES: This study asked: What is known from the existing literature about the empirical relationships between health literacy (HL) and the three stages of the treatment decision making (TDM) process: information exchange, deliberation, and deciding on the treatment to implement?METHODS: A scoping review of the literature was conducted. Four databases were searched and a total of 2772 records were returned. After de-duplication and three levels of relevance screening, 41 primary studies were included.RESULTS: Relationships between HL and information exchange were studied more often than relationships between HL and deliberation and deciding on the treatment to implement. Across the 41 studies, there was little overlap in terms the measure(s) of HL adopted, the aspect of TDM considered, and the characteristics of the study populations - making comparisons of the findings difficult. Multiple knowledge gaps and measurement-related problems were identified; including, the possibility that the process of TDM influences HL.CONCLUSION: The importance of HL to the three stages of TDM is unclear because of the knowledge gaps and measurement-related problems that exist.PRACTICE IMPLICATIONS: There are many uncertainties about how TDM, or the design and use of patient decision aids, should respond to patients with different levels of HL.
AB - OBJECTIVES: This study asked: What is known from the existing literature about the empirical relationships between health literacy (HL) and the three stages of the treatment decision making (TDM) process: information exchange, deliberation, and deciding on the treatment to implement?METHODS: A scoping review of the literature was conducted. Four databases were searched and a total of 2772 records were returned. After de-duplication and three levels of relevance screening, 41 primary studies were included.RESULTS: Relationships between HL and information exchange were studied more often than relationships between HL and deliberation and deciding on the treatment to implement. Across the 41 studies, there was little overlap in terms the measure(s) of HL adopted, the aspect of TDM considered, and the characteristics of the study populations - making comparisons of the findings difficult. Multiple knowledge gaps and measurement-related problems were identified; including, the possibility that the process of TDM influences HL.CONCLUSION: The importance of HL to the three stages of TDM is unclear because of the knowledge gaps and measurement-related problems that exist.PRACTICE IMPLICATIONS: There are many uncertainties about how TDM, or the design and use of patient decision aids, should respond to patients with different levels of HL.
KW - health literacy
KW - treatment decision making
KW - shared decision making
KW - patient decision aids
U2 - 10.1016/j.pec.2014.11.004
DO - 10.1016/j.pec.2014.11.004
M3 - Article
C2 - 25535012
VL - 98
SP - 296
EP - 309
JO - Patient Education and Counseling
JF - Patient Education and Counseling
SN - 0738-3991
IS - 3
ER -