EVOLVE: Designing a model of meaningful patient involvement in guideline development

Josefine Bjorkqvist, S. MacLennan, R.H. Giles, Philip Cornford, Sara MacLennan

Research output: Contribution to journalArticlepeer-review

Abstract

The importance of patient involvement in the development of clinical practice guidelines is internationally recognised.
Patients’ unique experience of living with the condition and its consequences gives them a lived perspective, which can contribute to improvements
in quality of care. Integrating patient preferences and values within guidelines can lead to more relevant and person-centred guidelines. However,
studies show that patient involvement in guideline development remains poor. This study aims to develop a model of meaningful patient involvement
to address which stakeholders to involve, how to involve them and at what stage of the guideline development process. We will also investigate
how wider stakeholders such as patient support and advocacy organisations can help to integrate patient preferences and values in guideline
development.
Original languageEnglish
JournalEuropean Urology Supplements
DOIs
Publication statusPublished - 1 Mar 2019

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