Extreme (“pathological”) demand avoidance in autism

a general population study in the Faroe Islands

Christopher Gillberg, I Carina Gillberg, Lucy Thompson, Rannvá Biskupsto, Eva Billstedt

Research output: Contribution to journalArticle

7 Citations (Scopus)

Abstract

Research into Pathological Demand Avoidance (PDA), which has been suggested to be a subgroup within the Autism Spectrum Disorder (ASD), is almost nonexistent in spite of the frequent reference to the condition in clinical practice. The total population of 15 to 24-year-olds in the Faroe Islands was screened for ASD, and 67 individuals were identified who met diagnostic criteria for ASD (corresponding to a general population prevalence of ASD of almost 1 %). Of these 67, 50 had parents who were interviewed using the Diagnostic Interview for Social and Communication Disorders (DISCO-11) which contains 15 “PDA-specific” items. Nine individuals met criteria for “possible clinical diagnosis of PDA”, meaning that almost one in five of all with ASD also had indications of having had PDA in childhood, and that 0.18 % of the total population had had the combination of ASD and PDA. However, at the time of assessment, only one of the 9 individuals with possible PDA still met “full criteria”. PDA possibly constitutes a considerable minority of all cases with ASD diagnosed in childhood, but criteria for the condition are unlikely to be still met in later adolescence and early adult life.
Original languageEnglish
Pages (from-to)979-984
Number of pages6
JournalEuropean Child & Adolescent Psychiatry
Volume24
Issue number8
Early online date15 Nov 2014
DOIs
Publication statusPublished - Aug 2015

Fingerprint

Denmark
Autistic Disorder
Population
Autism Spectrum Disorder
Parents
Interviews
Research

Keywords

  • pathological demand avoidance
  • extreme demand avoidance
  • autism spectrum disorder
  • population study
  • Faroe Islands
  • prevalence
  • gender

Cite this

Extreme (“pathological”) demand avoidance in autism : a general population study in the Faroe Islands. / Gillberg, Christopher; Gillberg, I Carina; Thompson, Lucy; Biskupsto, Rannvá; Billstedt, Eva.

In: European Child & Adolescent Psychiatry, Vol. 24, No. 8, 08.2015, p. 979-984.

Research output: Contribution to journalArticle

Gillberg, Christopher ; Gillberg, I Carina ; Thompson, Lucy ; Biskupsto, Rannvá ; Billstedt, Eva. / Extreme (“pathological”) demand avoidance in autism : a general population study in the Faroe Islands. In: European Child & Adolescent Psychiatry. 2015 ; Vol. 24, No. 8. pp. 979-984.
@article{5ce33aaacfa04435953b4394979244db,
title = "Extreme (“pathological”) demand avoidance in autism: a general population study in the Faroe Islands",
abstract = "Research into Pathological Demand Avoidance (PDA), which has been suggested to be a subgroup within the Autism Spectrum Disorder (ASD), is almost nonexistent in spite of the frequent reference to the condition in clinical practice. The total population of 15 to 24-year-olds in the Faroe Islands was screened for ASD, and 67 individuals were identified who met diagnostic criteria for ASD (corresponding to a general population prevalence of ASD of almost 1 {\%}). Of these 67, 50 had parents who were interviewed using the Diagnostic Interview for Social and Communication Disorders (DISCO-11) which contains 15 “PDA-specific” items. Nine individuals met criteria for “possible clinical diagnosis of PDA”, meaning that almost one in five of all with ASD also had indications of having had PDA in childhood, and that 0.18 {\%} of the total population had had the combination of ASD and PDA. However, at the time of assessment, only one of the 9 individuals with possible PDA still met “full criteria”. PDA possibly constitutes a considerable minority of all cases with ASD diagnosed in childhood, but criteria for the condition are unlikely to be still met in later adolescence and early adult life.",
keywords = "pathological demand avoidance, extreme demand avoidance, autism spectrum disorder, population study, Faroe Islands, prevalence, gender",
author = "Christopher Gillberg and Gillberg, {I Carina} and Lucy Thompson and Rannv{\'a} Biskupsto and Eva Billstedt",
note = "Acknowledgments: The study is funded by the Swedish Research Council.",
year = "2015",
month = "8",
doi = "10.1007/s00787-014-0647-3",
language = "English",
volume = "24",
pages = "979--984",
journal = "European Child & Adolescent Psychiatry",
issn = "1018-8827",
publisher = "D. Steinkopff-Verlag",
number = "8",

}

TY - JOUR

T1 - Extreme (“pathological”) demand avoidance in autism

T2 - a general population study in the Faroe Islands

AU - Gillberg, Christopher

AU - Gillberg, I Carina

AU - Thompson, Lucy

AU - Biskupsto, Rannvá

AU - Billstedt, Eva

N1 - Acknowledgments: The study is funded by the Swedish Research Council.

PY - 2015/8

Y1 - 2015/8

N2 - Research into Pathological Demand Avoidance (PDA), which has been suggested to be a subgroup within the Autism Spectrum Disorder (ASD), is almost nonexistent in spite of the frequent reference to the condition in clinical practice. The total population of 15 to 24-year-olds in the Faroe Islands was screened for ASD, and 67 individuals were identified who met diagnostic criteria for ASD (corresponding to a general population prevalence of ASD of almost 1 %). Of these 67, 50 had parents who were interviewed using the Diagnostic Interview for Social and Communication Disorders (DISCO-11) which contains 15 “PDA-specific” items. Nine individuals met criteria for “possible clinical diagnosis of PDA”, meaning that almost one in five of all with ASD also had indications of having had PDA in childhood, and that 0.18 % of the total population had had the combination of ASD and PDA. However, at the time of assessment, only one of the 9 individuals with possible PDA still met “full criteria”. PDA possibly constitutes a considerable minority of all cases with ASD diagnosed in childhood, but criteria for the condition are unlikely to be still met in later adolescence and early adult life.

AB - Research into Pathological Demand Avoidance (PDA), which has been suggested to be a subgroup within the Autism Spectrum Disorder (ASD), is almost nonexistent in spite of the frequent reference to the condition in clinical practice. The total population of 15 to 24-year-olds in the Faroe Islands was screened for ASD, and 67 individuals were identified who met diagnostic criteria for ASD (corresponding to a general population prevalence of ASD of almost 1 %). Of these 67, 50 had parents who were interviewed using the Diagnostic Interview for Social and Communication Disorders (DISCO-11) which contains 15 “PDA-specific” items. Nine individuals met criteria for “possible clinical diagnosis of PDA”, meaning that almost one in five of all with ASD also had indications of having had PDA in childhood, and that 0.18 % of the total population had had the combination of ASD and PDA. However, at the time of assessment, only one of the 9 individuals with possible PDA still met “full criteria”. PDA possibly constitutes a considerable minority of all cases with ASD diagnosed in childhood, but criteria for the condition are unlikely to be still met in later adolescence and early adult life.

KW - pathological demand avoidance

KW - extreme demand avoidance

KW - autism spectrum disorder

KW - population study

KW - Faroe Islands

KW - prevalence

KW - gender

U2 - 10.1007/s00787-014-0647-3

DO - 10.1007/s00787-014-0647-3

M3 - Article

VL - 24

SP - 979

EP - 984

JO - European Child & Adolescent Psychiatry

JF - European Child & Adolescent Psychiatry

SN - 1018-8827

IS - 8

ER -