In order to develop interventions and conduct studies which endeavour to improve the quality of the care provided and improve outcomes and wellbeing for individuals with HD and their families, it is crucial to establish and understand factors, structures and processes underpinning health and social care delivery at different clinics around the world.
|Number of pages||1|
|Journal||Journal of Neurology, Neurosurgery & Psychiatry|
|Issue number||Suppl 1|
|Publication status||Published - Sep 2014|
|Event||8th European-Huntington's-Disease-Network Plenary Meeting - Barcelona, Spain|
Duration: 19 Sep 2014 → 21 Sep 2014
Rae, D., Frich, J., Roxburgh, R., Nelson, E. C., Giuliano, J., & Enroll-HD Care Improvement Comm (2014). Health Care Delivery In Huntington’s Disease: An Exploratory Survey. Journal of Neurology, Neurosurgery & Psychiatry, 85(Suppl 1), A4-A4. [A10]. https://doi.org/10.1136/jnnp-2014-309032.10