Life interrupted and life regained? Coping with stroke at a young age

Kerry Kuluski, Claire Dow, Louise Locock, Renee F. Lyons, Daniel Lasserson

Research output: Contribution to journalArticlepeer-review

38 Citations (Scopus)
6 Downloads (Pure)


Stroke is a leading cause of disability across the developed world, affecting an increasing number of younger people. In this article, we seek to understand the experience of stroke as a disabling life situation among young people and the strategies that they use to recover and cope. Directed content analysis was conducted from interviews with 17 community-dwelling stroke survivors aged 55 years and younger across the United Kingdom. The sample was drawn from a larger maximum variation sample of stroke survivors. Using the sociological concepts of biographical disruption and biographical repair as a guide, excerpts from the interviews pertaining to aspects of the patients' life that were interrupted, in addition to how they coped with the changes, were selected and analysed. All individuals described an "altered sense of self," a theme that included loss of identity, family disruption, and/or loss of valued activities. Individuals sought to adapt their sense of self by seeking external support, by restoring normality, and/or through positive reflection. Despite the adapted self that emerged, most individuals continued to experience impairments. While young stroke survivors adapt to their illness over time, they continue to experience impairments and disruptions in their personal and work lives. A holistic model of rehabilitation that helps individuals regain the capacity for everyday activities related to work, family life, and leisure can begin to address the emotional ramifications of diseases such as stroke, restore wellness, and work towards minimizing the burden felt by family caregivers and children.
Original languageEnglish
Article number22252
Pages (from-to)1-12
Number of pages12
JournalInternational Journal of Qualitative Studies in Health and Well-being
Issue number1
Early online date23 Jan 2014
Publication statusPublished - 2014


  • stroke
  • patient experience
  • young
  • qualitative
  • coping


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