Measuring outcomes of importance to women with stress urinary incontinence

L Ternent, L Vale, B Buckley, C Glazener

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Abstract

To provide evidence on outcomes of importance to women who have stress urinary incontinence (SUI). The secondary aim was to identify additional outcomes that ought to be collected in future primary studies or in systematic reviews of the literature.

Questionnaire survey of a cohort of women with SUI.

UK.

A total of 188 women with SUI.

Areas of importance to women who suffer from SUI were assessed using a patient generated index (PGI). In addition to the PGI, the questionnaire included the King's Health Questionnaire (KHQ) and the EuroQol-5D (EQ-5D).

PGI, EQ-5D and the KHQ.

In total, 38 different areas were reported by respondents on the PGI. PGI and EQ-5D scores were positively correlated and significant. Correlations between the seven domains of the KHQ and PGI were all negative, but only two were statistically significant: personal relationships and severity measures.

The PGI succeeded in capturing a diverse range of outcomes of importance to women suffering with SUI. Given the limited correlation between the KHQ domains and the PGI and, in addition, that the areas mentioned in the PGI were not found to map well to the EQ-5D, the PGI in this instance may be capturing concerns of women who suffer from SUI, which are not captured by quality-of-life measures such as the EQ-5D.

Original languageEnglish
Pages (from-to)719-725
Number of pages7
JournalBritish Journal of Obstetrics and Gynaecology
Volume116
Issue number5
Early online date11 Mar 2009
DOIs
Publication statusPublished - Apr 2009

Keywords

  • patient generated index
  • quality of life
  • stress urinary incontinence
  • quality-of-life
  • patient-generated index
  • help-seeking
  • questionnaire

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