Navigating healthcare

a qualitative study exploring prostate cancer patients' and doctors' experience of consultations using a decision-support intervention

B. Hacking (Corresponding Author), S. E. Scott, L. M. Wallace, S. C. Shepherd, J. Belkora

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Background
Men with prostate cancer face preference-sensitive decisions when choosing among treatments with similar survival outcomes but different procedures, risks and potential complications. A decision-support intervention, ‘Decision Navigation’ assists men with prostate cancer to prepare a question list (consultation plan) for their doctors and provides them with a consultation summary and audio recording. A randomised controlled trial of Decision Navigation showed advantages over usual care on quantitative measures including confidence in decision-making and regret.

Objective
The aim of this study was to gain a qualitative understanding of patient's and doctor's perspectives on Decision Navigation.

Methods
Six patients who received Decision Navigation were purposively selected for interview out of 62 randomised controlled trial participants. All four doctors who consulted Navigated patients were interviewed. Interview data was analysed using framework analysis.

Results
Patients reported that planning for the consultation helped them to frame their questions, enabling them to participate in consultations and take responsibility for making decisions. They reported feeling more confident in the decisions made, having a written report of the key information and an audio recording. Patients considered routine information relating to side effects was inadequate. Doctors reported that consultation plans made them aware of patients' concerns and ensured comprehensive responses to questions posed. Doctors also endorsed implementing Decision Navigation as part of routine care.

Conclusion
Results suggest that Decision Navigation facilitated patients' involvement in treatment decision-making. Prostate patients engaging in preference-sensitive decision-making welcomed this approach to personalised tailored support. Copyright © 2014 John Wiley & Sons, Ltd.
Original languageEnglish
Pages (from-to)665-671
Number of pages7
JournalPsycho-Oncology
Volume23
Issue number6
Early online date14 Feb 2014
DOIs
Publication statusPublished - Jun 2014

Fingerprint

Prostatic Neoplasms
Referral and Consultation
Delivery of Health Care
Decision Making
Emotions
Randomized Controlled Trials
Interviews
Patient Participation
Nuclear Family
Prostate
Survival
Therapeutics

Keywords

  • prostate cancer
  • decision support
  • cancer
  • prostate
  • decisions
  • support
  • consultations

Cite this

Navigating healthcare : a qualitative study exploring prostate cancer patients' and doctors' experience of consultations using a decision-support intervention. / Hacking, B. (Corresponding Author); Scott, S. E.; Wallace, L. M.; Shepherd, S. C.; Belkora, J.

In: Psycho-Oncology, Vol. 23, No. 6, 06.2014, p. 665-671.

Research output: Contribution to journalArticle

Hacking, B. ; Scott, S. E. ; Wallace, L. M. ; Shepherd, S. C. ; Belkora, J. / Navigating healthcare : a qualitative study exploring prostate cancer patients' and doctors' experience of consultations using a decision-support intervention. In: Psycho-Oncology. 2014 ; Vol. 23, No. 6. pp. 665-671.
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