Partial or total knee replacement? Identifying patients’ information needs on knee replacement surgery: a qualitative study to inform a decision aid

Stephanie Smith* (Corresponding Author), Abtin Alvand, Louise Locock, Sara Ryan, James Smith, Lee Bayliss, Hannah Wilson, Andrew Price

*Corresponding author for this work

Research output: Contribution to journalArticle

Abstract

Purpose
For patients with end-stage knee osteoarthritis, joint replacement is a widely used and successful operation to help improve quality-of-life when non-operative measures have failed. For a significant proportion of patients there is a choice between a partial or total knee replacement. Decision aids can help people weigh up the need for and benefits of treatment against possible risks and side-effects. This study explored patients’ experiences of deciding to undergo knee replacement surgery to identify information priorities, to inform a knee replacement decision aid.
Methods
Four focus groups were held with 31 patients who were candidates for both partial and total knee replacement surgery. Two focus groups included patients with no prior knee replacement surgery (pre-surgery); two with patients with one knee already replaced and who were candidates for a second surgery on their other knee (post-surgery). Data were analysed using Framework Analysis.
Results
Participants described a process of arriving at ‘readiness for surgery’ a turning point where the need for treatment outweighed their concerns. Referral and personal factors influenced their decision-making and expectations of surgery in the hope to return to a former self. Those with previous knee surgery offered insights into whether their expectations were met. ‘Information for decisions’ details the practicality and the optimal timing for the delivery of a knee replacement decision aid. In particular, participants would have valued hearing about the experiences of other patients and seeing detailed pictures of both surgical options. Information priorities were identified to include in a decision aid for knee replacement surgery.
Conclusions
Patients’ experiences of surgical decision-making have much in common with the Necessity-Concerns Framework. Whilst originally developed to understand drug treatment decisions and adherence, it provides a useful lens to understand decision-making about surgery. The use of a decision aid could enhance decision-making on knee replacement surgery. Ultimately, patients’ understanding of the risks and benefits of both surgical options could be improved and in turn, help informed decision-making. The knee replacement decision aid is perceived as a useful tool to be associated with other detailed information resources as recommended.
Original languageEnglish
JournalQuality of Life Research
Early online date17 Dec 2019
DOIs
Publication statusE-pub ahead of print - 17 Dec 2019

Fingerprint

Knee Replacement Arthroplasties
Decision Support Techniques
Knee
Decision Making
Focus Groups
Replacement Arthroplasties
Knee Osteoarthritis
Knee Joint
Lenses
Hearing
Therapeutics
Referral and Consultation
Quality of Life

Keywords

  • Knee arthroplasty
  • Partial knee replacement
  • Total knee replacement
  • Information needs
  • Shared decision-making
  • Decision aid
  • Option grid
  • Framework analysis
  • Qualitative

Cite this

Partial or total knee replacement? Identifying patients’ information needs on knee replacement surgery : a qualitative study to inform a decision aid. / Smith, Stephanie (Corresponding Author); Alvand, Abtin ; Locock, Louise; Ryan, Sara; Smith, James; Bayliss, Lee; Wilson, Hannah; Price, Andrew.

In: Quality of Life Research, 17.12.2019.

Research output: Contribution to journalArticle

@article{96e8d3e2c9d74ee6812e1f7b4ba3e1f5,
title = "Partial or total knee replacement? Identifying patients’ information needs on knee replacement surgery: a qualitative study to inform a decision aid",
abstract = "PurposeFor patients with end-stage knee osteoarthritis, joint replacement is a widely used and successful operation to help improve quality-of-life when non-operative measures have failed. For a significant proportion of patients there is a choice between a partial or total knee replacement. Decision aids can help people weigh up the need for and benefits of treatment against possible risks and side-effects. This study explored patients’ experiences of deciding to undergo knee replacement surgery to identify information priorities, to inform a knee replacement decision aid.MethodsFour focus groups were held with 31 patients who were candidates for both partial and total knee replacement surgery. Two focus groups included patients with no prior knee replacement surgery (pre-surgery); two with patients with one knee already replaced and who were candidates for a second surgery on their other knee (post-surgery). Data were analysed using Framework Analysis.ResultsParticipants described a process of arriving at ‘readiness for surgery’ a turning point where the need for treatment outweighed their concerns. Referral and personal factors influenced their decision-making and expectations of surgery in the hope to return to a former self. Those with previous knee surgery offered insights into whether their expectations were met. ‘Information for decisions’ details the practicality and the optimal timing for the delivery of a knee replacement decision aid. In particular, participants would have valued hearing about the experiences of other patients and seeing detailed pictures of both surgical options. Information priorities were identified to include in a decision aid for knee replacement surgery.ConclusionsPatients’ experiences of surgical decision-making have much in common with the Necessity-Concerns Framework. Whilst originally developed to understand drug treatment decisions and adherence, it provides a useful lens to understand decision-making about surgery. The use of a decision aid could enhance decision-making on knee replacement surgery. Ultimately, patients’ understanding of the risks and benefits of both surgical options could be improved and in turn, help informed decision-making. The knee replacement decision aid is perceived as a useful tool to be associated with other detailed information resources as recommended.",
keywords = "Knee arthroplasty, Partial knee replacement, Total knee replacement, Information needs, Shared decision-making, Decision aid, Option grid, Framework analysis, Qualitative",
author = "Stephanie Smith and Abtin Alvand and Louise Locock and Sara Ryan and James Smith and Lee Bayliss and Hannah Wilson and Andrew Price",
note = "The funding has been made available through the Academic Knee Surgery Research Programme that is run by Professor Andrew Price. This group is based at the Botnar Research Centre is part funded by the Oxford NIHR Biomedical Research Centre.",
year = "2019",
month = "12",
day = "17",
doi = "10.1007/s11136-019-02381-9",
language = "English",
journal = "Quality of Life Research",
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T1 - Partial or total knee replacement? Identifying patients’ information needs on knee replacement surgery

T2 - a qualitative study to inform a decision aid

AU - Smith, Stephanie

AU - Alvand, Abtin

AU - Locock, Louise

AU - Ryan, Sara

AU - Smith, James

AU - Bayliss, Lee

AU - Wilson, Hannah

AU - Price, Andrew

N1 - The funding has been made available through the Academic Knee Surgery Research Programme that is run by Professor Andrew Price. This group is based at the Botnar Research Centre is part funded by the Oxford NIHR Biomedical Research Centre.

PY - 2019/12/17

Y1 - 2019/12/17

N2 - PurposeFor patients with end-stage knee osteoarthritis, joint replacement is a widely used and successful operation to help improve quality-of-life when non-operative measures have failed. For a significant proportion of patients there is a choice between a partial or total knee replacement. Decision aids can help people weigh up the need for and benefits of treatment against possible risks and side-effects. This study explored patients’ experiences of deciding to undergo knee replacement surgery to identify information priorities, to inform a knee replacement decision aid.MethodsFour focus groups were held with 31 patients who were candidates for both partial and total knee replacement surgery. Two focus groups included patients with no prior knee replacement surgery (pre-surgery); two with patients with one knee already replaced and who were candidates for a second surgery on their other knee (post-surgery). Data were analysed using Framework Analysis.ResultsParticipants described a process of arriving at ‘readiness for surgery’ a turning point where the need for treatment outweighed their concerns. Referral and personal factors influenced their decision-making and expectations of surgery in the hope to return to a former self. Those with previous knee surgery offered insights into whether their expectations were met. ‘Information for decisions’ details the practicality and the optimal timing for the delivery of a knee replacement decision aid. In particular, participants would have valued hearing about the experiences of other patients and seeing detailed pictures of both surgical options. Information priorities were identified to include in a decision aid for knee replacement surgery.ConclusionsPatients’ experiences of surgical decision-making have much in common with the Necessity-Concerns Framework. Whilst originally developed to understand drug treatment decisions and adherence, it provides a useful lens to understand decision-making about surgery. The use of a decision aid could enhance decision-making on knee replacement surgery. Ultimately, patients’ understanding of the risks and benefits of both surgical options could be improved and in turn, help informed decision-making. The knee replacement decision aid is perceived as a useful tool to be associated with other detailed information resources as recommended.

AB - PurposeFor patients with end-stage knee osteoarthritis, joint replacement is a widely used and successful operation to help improve quality-of-life when non-operative measures have failed. For a significant proportion of patients there is a choice between a partial or total knee replacement. Decision aids can help people weigh up the need for and benefits of treatment against possible risks and side-effects. This study explored patients’ experiences of deciding to undergo knee replacement surgery to identify information priorities, to inform a knee replacement decision aid.MethodsFour focus groups were held with 31 patients who were candidates for both partial and total knee replacement surgery. Two focus groups included patients with no prior knee replacement surgery (pre-surgery); two with patients with one knee already replaced and who were candidates for a second surgery on their other knee (post-surgery). Data were analysed using Framework Analysis.ResultsParticipants described a process of arriving at ‘readiness for surgery’ a turning point where the need for treatment outweighed their concerns. Referral and personal factors influenced their decision-making and expectations of surgery in the hope to return to a former self. Those with previous knee surgery offered insights into whether their expectations were met. ‘Information for decisions’ details the practicality and the optimal timing for the delivery of a knee replacement decision aid. In particular, participants would have valued hearing about the experiences of other patients and seeing detailed pictures of both surgical options. Information priorities were identified to include in a decision aid for knee replacement surgery.ConclusionsPatients’ experiences of surgical decision-making have much in common with the Necessity-Concerns Framework. Whilst originally developed to understand drug treatment decisions and adherence, it provides a useful lens to understand decision-making about surgery. The use of a decision aid could enhance decision-making on knee replacement surgery. Ultimately, patients’ understanding of the risks and benefits of both surgical options could be improved and in turn, help informed decision-making. The knee replacement decision aid is perceived as a useful tool to be associated with other detailed information resources as recommended.

KW - Knee arthroplasty

KW - Partial knee replacement

KW - Total knee replacement

KW - Information needs

KW - Shared decision-making

KW - Decision aid

KW - Option grid

KW - Framework analysis

KW - Qualitative

U2 - 10.1007/s11136-019-02381-9

DO - 10.1007/s11136-019-02381-9

M3 - Article

JO - Quality of Life Research

JF - Quality of Life Research

SN - 0962-9343

ER -