Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials

Ciara Buckley, Shaun Treweek, Lynn Laidlaw, Frances Shiely* (Corresponding Author)

*Corresponding author for this work

Research output: Contribution to journalLetterpeer-review

Abstract

We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter, asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The purpose of this study was to answer this question.

Original languageEnglish
Article number93
Number of pages5
JournalTrials
Volume24
Issue number1
Early online date7 Feb 2023
DOIs
Publication statusPublished - 7 Feb 2023

Keywords

  • Trial methodology
  • methodology
  • Clinical trials
  • Patient and Public Involvement/PPI

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