Patients, health information, and guidelines

A focus-group study

Helena Liira, Osmo Saarelma, Margaret Callaghan, Robin Harbour, Jukkapekka Jousimaa, Ilkka Kunnamo, Kirsty Loudon, Emma McFarlane, Shaun Patrick Treweek

Research output: Contribution to journalArticle

5 Citations (Scopus)
5 Downloads (Pure)

Abstract

Background. Evidence-based clinical guidelines could support shared decision-making and help patients to participate actively in their care. However, it is not well known how patients view guidelines as a source of health information. This qualitative study aimed to assess what patients know about guidelines, and what they think of their presentation formats. Research question. What is the role of guidelines as health information for patients and how could the implementation of evidence-based information for patients be improved? Methods. A qualitative study with focus groups that were built around a semi-structured topic guide. Focus groups were audiotaped and transcribed and analysed using a phenomenographic approach. Results. Five focus groups were carried out in 2012 with a total of 23 participants. Patients searched for health information from the Internet or consulted health professionals or their personal networks. The concepts of guidelines included instructions or standards for health professionals, information given by a health professional to the patient, and material to protect and promote the interests of patients. Some patients did not have a concept for guidelines. Patients felt that health information was abundant and its quality sometimes difficult to assess. They respected conciseness, clarity, clear structure, and specialists or well-known organizations as authors of health information. Patients would like health professionals to deliver and clarify written materials to them or point out to them the relevant Internet sites. Conclusions. The concept of guidelines was not well known among our interviewees; however, they expressed an interest in having more communication on health information, both written information and clarifications with their health professionals.
Original languageEnglish
Pages (from-to)212-219
Number of pages8
JournalScandinavian Journal of Primary Health Care
Volume33
Issue number3
Early online date24 Jul 2015
DOIs
Publication statusPublished - 2015

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Focus Groups
Guidelines
Health
Internet
Health Communication
Decision Making

Keywords

  • clinical guidelines
  • patient information
  • patient versions
  • concepts
  • focus groups
  • Finland
  • general practice

Cite this

Patients, health information, and guidelines : A focus-group study. / Liira, Helena; Saarelma, Osmo; Callaghan, Margaret; Harbour, Robin; Jousimaa, Jukkapekka; Kunnamo, Ilkka; Loudon, Kirsty; McFarlane, Emma; Treweek, Shaun Patrick.

In: Scandinavian Journal of Primary Health Care, Vol. 33, No. 3, 2015, p. 212-219.

Research output: Contribution to journalArticle

Liira, H, Saarelma, O, Callaghan, M, Harbour, R, Jousimaa, J, Kunnamo, I, Loudon, K, McFarlane, E & Treweek, SP 2015, 'Patients, health information, and guidelines: A focus-group study', Scandinavian Journal of Primary Health Care, vol. 33, no. 3, pp. 212-219. https://doi.org/10.3109/02813432.2015.1067517
Liira, Helena ; Saarelma, Osmo ; Callaghan, Margaret ; Harbour, Robin ; Jousimaa, Jukkapekka ; Kunnamo, Ilkka ; Loudon, Kirsty ; McFarlane, Emma ; Treweek, Shaun Patrick. / Patients, health information, and guidelines : A focus-group study. In: Scandinavian Journal of Primary Health Care. 2015 ; Vol. 33, No. 3. pp. 212-219.
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