Across Europe management of long-term conditions and complex rare diseases has become a major focus of policy development. Such policies promote person–centred, co-ordinated multi-disciplinary care delivered through partnership working within managed care networks to ensure independent living and better quality of life. The Scottish Huntington’s Association has partnered with government agencies to develop a model care pathway for Huntington’s disease integrating health and social care services that has been successfully implemented across Scotland.
|Number of pages||1|
|Journal||Journal of Neurology, Neurosurgery & Psychiatry|
|Issue number||Suppl 1|
|Publication status||Published - Sep 2014|
|Event||8th European-Huntington's-Disease-Network Plenary Meeting - Barcelona, Spain|
Duration: 19 Sep 2014 → 21 Sep 2014
Rae, D., Eden, J., Miedzybrodzka, Z., & Scottish Huntington's Assoc (2014). Shaping The Huntington’s Disease Journey: A Managed Care Pathway For Scotland. Journal of Neurology, Neurosurgery & Psychiatry, 85(Suppl 1), A84-A84. [L04]. https://doi.org/10.1136/jnnp-2014-309032.241