Special Report - Nutritional management of individuals with Huntington’s disease: nutritional guidelines

Alisa Brotherton, Lillian Campos, Arleen Rowell, Vanessa Zoia, Sheila A Simpson, Daniela Rae

Research output: Contribution to journalSpecial issue

Abstract

The delivery of good nutritional care is a fundamental element of the management of individuals with Huntington’s disease and all patients with Huntington’s disease will, at some time, need dietary intervention because of the sequela of the disease;
yet there are no European nutritional guidelines. The European Huntington’s Disease Network Standards of Care Dietitians Group has brought together expert dietitians from across Europe to produce nutritional guidelines to improve the nutritional management of individuals with Huntington’s disease. The guidelines were developed to promote optimal nutritional screening, assessment and management of individuals throughout all stages of the disease, with the aim of improving the standard of nutritional care delivered. Literature was systematically searched in an attempt to ensure that the recommendations are based on sound evidence and where evidence is lacking, specific guidance is based on consensus
expert dietetic opinion. The provision of nutritional care varies widely between countries. Implementation of these nutritional guidelines across Europe should improve the quality of nutritional care delivered to individuals with Huntington’s disease
Original languageEnglish
Pages (from-to)33-43
Number of pages11
JournalNeurodegenerative Disease Management
Volume2
Issue number1
Early online date15 Feb 2012
DOIs
Publication statusPublished - Feb 2012

Fingerprint

Huntington Disease
Guidelines
Nutritionists
Standard of Care
Nutrition Assessment
Dietetics
Quality of Health Care

Cite this

Special Report - Nutritional management of individuals with Huntington’s disease: nutritional guidelines. / Brotherton, Alisa; Campos, Lillian; Rowell, Arleen; Zoia, Vanessa; Simpson, Sheila A; Rae, Daniela.

In: Neurodegenerative Disease Management, Vol. 2, No. 1, 02.2012, p. 33-43.

Research output: Contribution to journalSpecial issue

Brotherton, Alisa ; Campos, Lillian ; Rowell, Arleen ; Zoia, Vanessa ; Simpson, Sheila A ; Rae, Daniela. / Special Report - Nutritional management of individuals with Huntington’s disease: nutritional guidelines. In: Neurodegenerative Disease Management. 2012 ; Vol. 2, No. 1. pp. 33-43.
@article{90bf9e29ef5748278ef162bf68365b74,
title = "Special Report - Nutritional management of individuals with Huntington’s disease: nutritional guidelines",
abstract = "The delivery of good nutritional care is a fundamental element of the management of individuals with Huntington’s disease and all patients with Huntington’s disease will, at some time, need dietary intervention because of the sequela of the disease;yet there are no European nutritional guidelines. The European Huntington’s Disease Network Standards of Care Dietitians Group has brought together expert dietitians from across Europe to produce nutritional guidelines to improve the nutritional management of individuals with Huntington’s disease. The guidelines were developed to promote optimal nutritional screening, assessment and management of individuals throughout all stages of the disease, with the aim of improving the standard of nutritional care delivered. Literature was systematically searched in an attempt to ensure that the recommendations are based on sound evidence and where evidence is lacking, specific guidance is based on consensusexpert dietetic opinion. The provision of nutritional care varies widely between countries. Implementation of these nutritional guidelines across Europe should improve the quality of nutritional care delivered to individuals with Huntington’s disease",
author = "Alisa Brotherton and Lillian Campos and Arleen Rowell and Vanessa Zoia and Simpson, {Sheila A} and Daniela Rae",
note = "Acknowledgements The authors would like to acknowledge the members of EHDN Standards of Care Dietitians Working Group. Financial & competing interests disclosure The EHDN had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed. No writing assistance was utilized in the production of this manuscript.",
year = "2012",
month = "2",
doi = "10.2217/nmt.11.69",
language = "English",
volume = "2",
pages = "33--43",
journal = "Neurodegenerative Disease Management",
number = "1",

}

TY - JOUR

T1 - Special Report - Nutritional management of individuals with Huntington’s disease: nutritional guidelines

AU - Brotherton, Alisa

AU - Campos, Lillian

AU - Rowell, Arleen

AU - Zoia, Vanessa

AU - Simpson, Sheila A

AU - Rae, Daniela

N1 - Acknowledgements The authors would like to acknowledge the members of EHDN Standards of Care Dietitians Working Group. Financial & competing interests disclosure The EHDN had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed. No writing assistance was utilized in the production of this manuscript.

PY - 2012/2

Y1 - 2012/2

N2 - The delivery of good nutritional care is a fundamental element of the management of individuals with Huntington’s disease and all patients with Huntington’s disease will, at some time, need dietary intervention because of the sequela of the disease;yet there are no European nutritional guidelines. The European Huntington’s Disease Network Standards of Care Dietitians Group has brought together expert dietitians from across Europe to produce nutritional guidelines to improve the nutritional management of individuals with Huntington’s disease. The guidelines were developed to promote optimal nutritional screening, assessment and management of individuals throughout all stages of the disease, with the aim of improving the standard of nutritional care delivered. Literature was systematically searched in an attempt to ensure that the recommendations are based on sound evidence and where evidence is lacking, specific guidance is based on consensusexpert dietetic opinion. The provision of nutritional care varies widely between countries. Implementation of these nutritional guidelines across Europe should improve the quality of nutritional care delivered to individuals with Huntington’s disease

AB - The delivery of good nutritional care is a fundamental element of the management of individuals with Huntington’s disease and all patients with Huntington’s disease will, at some time, need dietary intervention because of the sequela of the disease;yet there are no European nutritional guidelines. The European Huntington’s Disease Network Standards of Care Dietitians Group has brought together expert dietitians from across Europe to produce nutritional guidelines to improve the nutritional management of individuals with Huntington’s disease. The guidelines were developed to promote optimal nutritional screening, assessment and management of individuals throughout all stages of the disease, with the aim of improving the standard of nutritional care delivered. Literature was systematically searched in an attempt to ensure that the recommendations are based on sound evidence and where evidence is lacking, specific guidance is based on consensusexpert dietetic opinion. The provision of nutritional care varies widely between countries. Implementation of these nutritional guidelines across Europe should improve the quality of nutritional care delivered to individuals with Huntington’s disease

U2 - 10.2217/nmt.11.69

DO - 10.2217/nmt.11.69

M3 - Special issue

VL - 2

SP - 33

EP - 43

JO - Neurodegenerative Disease Management

JF - Neurodegenerative Disease Management

IS - 1

ER -