Systematically searching for and assessing the literature for self-management of chronic pain: a lay users' perspective

Pat Schofield, Blair H. Smith, Denis Martin, Derek Jones, Amanda Clarke, Paul McNamee, Ron Marsh, Michael Morrison, Rosemary Morrison, Sheena Fowler, Geraldine Anthony, Carrie Stewart

Research output: Contribution to journalArticle

2 Citations (Scopus)
6 Downloads (Pure)

Abstract

BACKGROUND: The Engaging with older adults in the development of strategies for the self management of chronic pain (EOPIC) study aims to design and develop self management strategies to enable older adults to manage their own pain. Involving older adults in research into chronic pain management will better enable the identification and development of strategies that are more appropriate for their use, but how can perspectives really be utilised to the best possible outcomes?

METHOD: Seven older adults were recruited through a local advertising campaign to take part. We also invited participants from the local pain services, individuals who had been involved in earlier phase of the EOPIC study and a previous ESRC funded project. The group undertook library training and research skills training to facilitate searching of the literature and identified sources of material. A grading tool was developed using perceived essential criteria identified by the older adults and material was graded according to the criteria within this scale.

RESULTS: Fifty-seven resources from over twenty-eight sources were identified. These materials were identified as being easily accessible, readable and relevant. Many of the web based materials were not always easy to find or readily available so they were excluded by the participants. All but one were UK based. Forty-four items were identified as meeting the key criteria for inclusion in the study. This included five key categories as follows; books, internet, magazines, leaflets, CD's/Tapes.

CONCLUSION: This project was able to identify a number of exemplars of self management material along with some general rules regarding the categories identified. We must point out that the materials identified were not age specific, were often locally developed and would need to be adapted to older adults with chronic pain. For copyright issues we have not included them in this paper. The key message is really related to the format rather than the content. However, the group acknowledge that these may vary according to the requirements of each individual older adult and therefore recommend the development of a leaflet to help others in their search for resources. This leaflet has been developed as part of Phase IV of the EOPIC study.

Original languageEnglish
Article number86
Number of pages8
JournalBMC Geriatrics
Volume14
Issue number1
DOIs
Publication statusPublished - 27 Jul 2014

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Self Care
Chronic Pain
Pain
Pain Management
Research
Internet
Libraries

Keywords

  • Older adults
  • Literature for self-management of chronic pain
  • Strategies for managing chronic pain
  • Involving older adults in research

Cite this

Systematically searching for and assessing the literature for self-management of chronic pain : a lay users' perspective. / Schofield, Pat; Smith, Blair H.; Martin, Denis; Jones, Derek; Clarke, Amanda; McNamee, Paul; Marsh, Ron; Morrison, Michael; Morrison, Rosemary; Fowler, Sheena; Anthony, Geraldine; Stewart, Carrie.

In: BMC Geriatrics, Vol. 14, No. 1, 86, 27.07.2014.

Research output: Contribution to journalArticle

Schofield, P, Smith, BH, Martin, D, Jones, D, Clarke, A, McNamee, P, Marsh, R, Morrison, M, Morrison, R, Fowler, S, Anthony, G & Stewart, C 2014, 'Systematically searching for and assessing the literature for self-management of chronic pain: a lay users' perspective' BMC Geriatrics, vol. 14, no. 1, 86. https://doi.org/10.1186/1471-2318-14-86
Schofield, Pat ; Smith, Blair H. ; Martin, Denis ; Jones, Derek ; Clarke, Amanda ; McNamee, Paul ; Marsh, Ron ; Morrison, Michael ; Morrison, Rosemary ; Fowler, Sheena ; Anthony, Geraldine ; Stewart, Carrie. / Systematically searching for and assessing the literature for self-management of chronic pain : a lay users' perspective. In: BMC Geriatrics. 2014 ; Vol. 14, No. 1.
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AU - Marsh, Ron

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AU - Morrison, Rosemary

AU - Fowler, Sheena

AU - Anthony, Geraldine

AU - Stewart, Carrie

N1 - We are very grateful to the lay members of our Advisory Group and a previous ESRC funded project. This study was funded by the Medical research Council as part of the Lifelong Health and Wellbeing programme. Our funders had no role in the design, execution, analysis and interpretation of the data, or writing of the study.

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N2 - BACKGROUND: The Engaging with older adults in the development of strategies for the self management of chronic pain (EOPIC) study aims to design and develop self management strategies to enable older adults to manage their own pain. Involving older adults in research into chronic pain management will better enable the identification and development of strategies that are more appropriate for their use, but how can perspectives really be utilised to the best possible outcomes?METHOD: Seven older adults were recruited through a local advertising campaign to take part. We also invited participants from the local pain services, individuals who had been involved in earlier phase of the EOPIC study and a previous ESRC funded project. The group undertook library training and research skills training to facilitate searching of the literature and identified sources of material. A grading tool was developed using perceived essential criteria identified by the older adults and material was graded according to the criteria within this scale.RESULTS: Fifty-seven resources from over twenty-eight sources were identified. These materials were identified as being easily accessible, readable and relevant. Many of the web based materials were not always easy to find or readily available so they were excluded by the participants. All but one were UK based. Forty-four items were identified as meeting the key criteria for inclusion in the study. This included five key categories as follows; books, internet, magazines, leaflets, CD's/Tapes.CONCLUSION: This project was able to identify a number of exemplars of self management material along with some general rules regarding the categories identified. We must point out that the materials identified were not age specific, were often locally developed and would need to be adapted to older adults with chronic pain. For copyright issues we have not included them in this paper. The key message is really related to the format rather than the content. However, the group acknowledge that these may vary according to the requirements of each individual older adult and therefore recommend the development of a leaflet to help others in their search for resources. This leaflet has been developed as part of Phase IV of the EOPIC study.

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