The development of the EORTC QLQ-C15-PAL:: a shortened questionnaire for cancer patients in palliative care

M. Groenvold; M. A. Petersen; N. K. Aaronson; J. I. Arraras; J. M. Blazeby; A. Bottomley; Peter Fayers; A. de graeff; E. Hammerlid; S. Kaasa; M. A. G. Sprangers; J. Bjorner; EORTC Quality of Life Group

doi:10.1016/j.ejca.2005.06.022

The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care

M. Groenvold, M. A. Petersen, N. K. Aaronson, J. I. Arraras, J. M. Blazeby, A. Bottomley, Peter Fayers, A. de graeff, E. Hammerlid, S. Kaasa, M. A. G. Sprangers, J. Bjorner, EORTC Quality of Life Group

Applied Health Sciences

Research output: Contribution to journal › Article › peer-review

489 Citations (Scopus)

Abstract

This study aimed at developing a shortened version of the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research. The study included interviews with 41 patients and 66 health care professionals in palliative care to determine the appropriateness, relevance and importance of the various domains of the QLQ-C30. Item response theory methods were used to shorten scales. Patients and health care professionals rated pain, physical function, emotional function, fatigue, global health status/quality of life, nausea/vomiting, appetite, dyspnoea, constipation, and sleep as most important. Therefore, these scales/items were retained in the questionnaire. Four scales were shortened without reducing measurement precision. Important dimensions not covered by the questionnaire were identified. The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires. (c) 2005 Elsevier Ltd. All rights reserved.

Original language	English
Pages (from-to)	55-64
Number of pages	10
Journal	European Journal of Cancer
Volume	42
Issue number	1
Early online date	12 Sept 2005
DOIs	https://doi.org/10.1016/j.ejca.2005.06.022
Publication status	Published - Jan 2006

Bibliographical note

Acknowledgements
This work was financially supported by the EORTC Quality of Life Group

Keywords

EORTC
quality of life
palliative care
questionnaires
health status
self-assessment
treatment outcome
randomized controlled trials
item response theory
Eeuropean organization
self assessment
lung cancer
QLQ-C30
validation
scale
scores

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1016/j.ejca.2005.06.022Licence: Unspecified

Cite this

Groenvold, M., Petersen, M. A., Aaronson, N. K., Arraras, J. I., Blazeby, J. M., Bottomley, A., Fayers, P., de graeff, A., Hammerlid, E., Kaasa, S., Sprangers, M. A. G., Bjorner, J., & EORTC Quality of Life Group (2006). The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. European Journal of Cancer, 42(1), 55-64. https://doi.org/10.1016/j.ejca.2005.06.022

Groenvold, M, Petersen, MA, Aaronson, NK, Arraras, JI, Blazeby, JM, Bottomley, A, Fayers, P, de graeff, A, Hammerlid, E, Kaasa, S, Sprangers, MAG, Bjorner, J & EORTC Quality of Life Group 2006, 'The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care', European Journal of Cancer, vol. 42, no. 1, pp. 55-64. https://doi.org/10.1016/j.ejca.2005.06.022

@article{b881ce6cf90b46b2885924d17855f3d2,

title = "The development of the EORTC QLQ-C15-PAL:: a shortened questionnaire for cancer patients in palliative care",

abstract = "This study aimed at developing a shortened version of the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research. The study included interviews with 41 patients and 66 health care professionals in palliative care to determine the appropriateness, relevance and importance of the various domains of the QLQ-C30. Item response theory methods were used to shorten scales. Patients and health care professionals rated pain, physical function, emotional function, fatigue, global health status/quality of life, nausea/vomiting, appetite, dyspnoea, constipation, and sleep as most important. Therefore, these scales/items were retained in the questionnaire. Four scales were shortened without reducing measurement precision. Important dimensions not covered by the questionnaire were identified. The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires. (c) 2005 Elsevier Ltd. All rights reserved.",

keywords = "EORTC, quality of life, palliative care, questionnaires, health status, self-assessment, treatment outcome, randomized controlled trials, item response theory, Eeuropean organization, self assessment, lung cancer, QLQ-C30, validation, scale, scores",

author = "M. Groenvold and Petersen, {M. A.} and Aaronson, {N. K.} and Arraras, {J. I.} and Blazeby, {J. M.} and A. Bottomley and Peter Fayers and {de graeff}, A. and E. Hammerlid and S. Kaasa and Sprangers, {M. A. G.} and J. Bjorner and {EORTC Quality of Life Group}",

note = "Acknowledgements This work was financially supported by the EORTC Quality of Life Group",

year = "2006",

month = jan,

doi = "10.1016/j.ejca.2005.06.022",

language = "English",

volume = "42",

pages = "55--64",

journal = "European Journal of Cancer",

issn = "0959-8049",

publisher = "ELSEVIER APPL SCI PUBL LTD",

number = "1",

}

TY - JOUR

T1 - The development of the EORTC QLQ-C15-PAL:

T2 - a shortened questionnaire for cancer patients in palliative care

AU - Groenvold, M.

AU - Petersen, M. A.

AU - Aaronson, N. K.

AU - Arraras, J. I.

AU - Blazeby, J. M.

AU - Bottomley, A.

AU - Fayers, Peter

AU - de graeff, A.

AU - Hammerlid, E.

AU - Kaasa, S.

AU - Sprangers, M. A. G.

AU - Bjorner, J.

AU - EORTC Quality of Life Group

N1 - Acknowledgements This work was financially supported by the EORTC Quality of Life Group

PY - 2006/1

Y1 - 2006/1

N2 - This study aimed at developing a shortened version of the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research. The study included interviews with 41 patients and 66 health care professionals in palliative care to determine the appropriateness, relevance and importance of the various domains of the QLQ-C30. Item response theory methods were used to shorten scales. Patients and health care professionals rated pain, physical function, emotional function, fatigue, global health status/quality of life, nausea/vomiting, appetite, dyspnoea, constipation, and sleep as most important. Therefore, these scales/items were retained in the questionnaire. Four scales were shortened without reducing measurement precision. Important dimensions not covered by the questionnaire were identified. The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires. (c) 2005 Elsevier Ltd. All rights reserved.

AB - This study aimed at developing a shortened version of the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research. The study included interviews with 41 patients and 66 health care professionals in palliative care to determine the appropriateness, relevance and importance of the various domains of the QLQ-C30. Item response theory methods were used to shorten scales. Patients and health care professionals rated pain, physical function, emotional function, fatigue, global health status/quality of life, nausea/vomiting, appetite, dyspnoea, constipation, and sleep as most important. Therefore, these scales/items were retained in the questionnaire. Four scales were shortened without reducing measurement precision. Important dimensions not covered by the questionnaire were identified. The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires. (c) 2005 Elsevier Ltd. All rights reserved.

KW - EORTC

KW - quality of life

KW - palliative care

KW - questionnaires

KW - health status

KW - self-assessment

KW - treatment outcome

KW - randomized controlled trials

KW - item response theory

KW - Eeuropean organization

KW - self assessment

KW - lung cancer

KW - QLQ-C30

KW - validation

KW - scale

KW - scores

U2 - 10.1016/j.ejca.2005.06.022

DO - 10.1016/j.ejca.2005.06.022

M3 - Article

SN - 0959-8049

VL - 42

SP - 55

EP - 64

JO - European Journal of Cancer

JF - European Journal of Cancer

IS - 1

ER -