The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making

Rebekah Laidsaar-Powell, Phyllis Butow, Cathy Charles, Amiram Gafni, Vikki Entwistle, Ronald Epstein, Ilona Juraskova

Research output: Contribution to journalArticle

12 Citations (Scopus)
5 Downloads (Pure)

Abstract

Objective Family caregivers are regularly involved in cancer consultations and treatment decision-making (DM). Yet there is limited conceptual description of caregiver influence/involvement in DM. To address this, an empirically-grounded conceptual framework of triadic DM (TRIO Framework) and corresponding graphical aid (TRIO Triangle) were developed.

Methods Jabareen’s model for conceptual framework development informed multiple phases of development/validation, incorporation of empirical research and theory, and iterative revisions by an expert advisory group.

Results Findings coalesced into six empirically-grounded conceptual insights: i) Caregiver influence over a decision is variable amongst different groups; ii) Caregiver influence is variable within the one triad over time; iii) Caregivers are involved in various ways in the wider DM process; iv) DM is not only amongst three, but can occur among wider social networks; v) Many factors may affect the form and extent of caregiver involvement in DM; vi) Caregiver influence over, and involvement in, DM is linked to their everyday involvement in illness care/management.

Conclusion The TRIO Framework/Triangle may serve as a useful guide for future empirical, ethical and/or theoretical work. Practice Implications This Framework can deepen clinicians’s and researcher’s understanding of the diverse and varying scope of caregiver involvement and influence in DM.
Original languageEnglish
Pages (from-to)2035-2046
Number of pages12
JournalPatient Education and Counseling
Volume100
Issue number11
Early online date5 May 2017
DOIs
Publication statusPublished - Nov 2017

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Caregivers
Decision Making
Neoplasms
Therapeutics
Empirical Research
Social Support
Referral and Consultation
Research Personnel

Keywords

  • family caregivers
  • triadic
  • medical decision-making
  • conceptual framework

ASJC Scopus subject areas

  • Medicine(all)

Cite this

The TRIO Framework : Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making. / Laidsaar-Powell, Rebekah; Butow, Phyllis; Charles, Cathy; Gafni, Amiram; Entwistle, Vikki; Epstein, Ronald; Juraskova, Ilona.

In: Patient Education and Counseling, Vol. 100, No. 11, 11.2017, p. 2035-2046.

Research output: Contribution to journalArticle

Laidsaar-Powell, R, Butow, P, Charles, C, Gafni, A, Entwistle, V, Epstein, R & Juraskova, I 2017, 'The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making', Patient Education and Counseling, vol. 100, no. 11, pp. 2035-2046. https://doi.org/10.1016/j.pec.2017.05.014
Laidsaar-Powell, Rebekah ; Butow, Phyllis ; Charles, Cathy ; Gafni, Amiram ; Entwistle, Vikki ; Epstein, Ronald ; Juraskova, Ilona. / The TRIO Framework : Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making. In: Patient Education and Counseling. 2017 ; Vol. 100, No. 11. pp. 2035-2046.
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