The complex and progressive nature of Huntington’s disease (HD) mean that individuals, and their families affected by the condition require a variety of generic and specialist health and social services. However, it is recognised that the provision and delivery of services for HD patients is variable and very little is known about the experiences and views of patients and carers regarding their condition and support needs.
|Number of pages||1|
|Journal||Journal of Neurology, Neurosurgery & Psychiatry|
|Issue number||Suppl 1|
|Publication status||Published - Sep 2014|
|Event||8th European-Huntington's-Disease-Network Plenary Meeting - Barcelona, Spain|
Duration: 19 Sep 2014 → 21 Sep 2014
Rae, D., McCann, S., & Miedzybrodzka, Z. (2014). Understanding the Health Care Experiences and needs of People Living with Huntingtons Disease (HD): An Exploratory Study. Journal of Neurology, Neurosurgery & Psychiatry, 85(Suppl 1), A83-A83. [L01]. https://doi.org/10.1136/jnnp-2014-309032.238