Understanding the Health Care Experiences and needs of People Living with Huntingtons Disease (HD): An Exploratory Study

D. Rae, S. McCann, Z. Miedzybrodzka

Research output: Contribution to journalAbstract

Abstract

The complex and progressive nature of Huntington’s disease (HD) mean that individuals, and their families affected by the condition require a variety of generic and specialist health and social services. However, it is recognised that the provision and delivery of services for HD patients is variable and very little is known about the experiences and views of patients and carers regarding their condition and support needs.
Original languageEnglish
Article numberL01
Pages (from-to)A83-A83
Number of pages1
JournalJournal of Neurology, Neurosurgery & Psychiatry
Volume85
Issue numberSuppl 1
DOIs
Publication statusPublished - Sep 2014
Event8th European-Huntington's-Disease-Network Plenary Meeting - Barcelona, Spain
Duration: 19 Sep 201421 Sep 2014

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