What Do You Want to Know? Investigating the Information Requirements of Patient Supporters

Wendy Moncur, Judith Masthoff, Ehud Baruch Reiter

Research output: Chapter in Book/Report/Conference proceedingConference contribution

9 Citations (Scopus)

Abstract

There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we discovered that most lay users want only a very high-level summary of the baby's state. What lay users do want is information about how the parents are coping, and what support they need. Findings were cross-validated through a questionnaire.
Original languageEnglish
Title of host publicationProceedings of the 21st IEEE International Symposium on Computer-Based Medical Systems (CBMS 2008)
Place of PublicationLoa Alamitos, CA, USA
PublisherIEEE Computer Society
ISBN (Print)978-0769531656
DOIs
Publication statusPublished - 2008
Event21st IEEE International Symposium on Computer-Based Medical Systems (CBMS 2008) - Jyvaskyla, Finland
Duration: 17 Jun 200819 Jun 2008

Publication series

NameProceedings - IEEE Symposium on Computer-Based Medical Systems
PublisherIEEE Computer Society
Number21
ISSN (Print)1063-7125

Conference

Conference21st IEEE International Symposium on Computer-Based Medical Systems (CBMS 2008)
CountryFinland
CityJyvaskyla
Period17/06/0819/06/08

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  • Cite this

    Moncur, W., Masthoff, J., & Reiter, E. B. (2008). What Do You Want to Know? Investigating the Information Requirements of Patient Supporters. In Proceedings of the 21st IEEE International Symposium on Computer-Based Medical Systems (CBMS 2008) (Proceedings - IEEE Symposium on Computer-Based Medical Systems; No. 21). IEEE Computer Society. https://doi.org/10.1109/CBMS.2008.36