Who defines the impact of research? A patient-centred opinion and call for action.

Mark A Taylor* (Corresponding Author), Paula Adam, Louise Locock, Adam Kamenetzky

*Corresponding author for this work

Research output: Contribution to journalArticle

Abstract

What is new?
Many methods exist to help explain the impact of research but little work has been undertaken to centrally involve the patient point of view. This paper discuss the need for patient involvement in impact assessment and a call for action going forward.
What was the approach?
The International School of Research Impact Assessment (ISRIA) recently issued a statement suggesting a basic structure for evaluation and stressing the importance of context and stakeholder engagement (Adam et al, 2018). Based on the principles outlined in the paper the authors considered possible structures to include patients within research impact assessment.
What is the scholarly impact?
Facilitated consultation and targeted patient-reported impact measures would give research evaluators a better understanding of impact from the patient perspective. For health and social care research the patient perspective is a key lens in ensuring relevance and accountability.
What is the wider impact?
Greater patient involvement and engagement with the impact assessment process may require adaptations to current cultural norms. It is accepted that impact is measured over time. Patient involvement in impact assessment needs to be facilitated with a similar mindset with the necessary underlying resource.
Original languageEnglish
JournalJournal of Research Management and Administration
Publication statusAccepted/In press - 23 Oct 2020

Keywords

  • Patient involvement
  • impact juries
  • PROMs

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