Abstract
Patient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.
Methods
A face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.
Results
A conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.
Conclusion
The framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.
Practice implications
The framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.
| Original language | English |
|---|---|
| Journal | Patient Education and Counseling |
| Early online date | 4 May 2019 |
| DOIs | |
| Publication status | E-pub ahead of print - 4 May 2019 |
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Keywords
- framework
- knowledge
- toold
- (shared) decision-making
- patient education
- communication
Cite this
A conceptual framework for patient-directed knowledge tools to support patient-centred care : Results from an evidence-informed consensus meeting. / Dreesens, Dunja (Corresponding Author); Stiggelbout, Anne; Agoritsas, Thomas; Elwyn, Glyn; Flottorp, Signe; Grimshaw, Jeremy; Kremer, Leontien; Santesso, Nancy; Stacey, Dawn; Treweek, Shaun; Armstrong, Melissa; Gagliardi, Anna; Hill, Sophie; Légaré, France; Ryan, Rebecca; Vandvik, Per; van der Weijden, Trudy.
In: Patient Education and Counseling, 04.05.2019.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - A conceptual framework for patient-directed knowledge tools to support patient-centred care
T2 - Results from an evidence-informed consensus meeting
AU - Dreesens, Dunja
AU - Stiggelbout, Anne
AU - Agoritsas, Thomas
AU - Elwyn, Glyn
AU - Flottorp, Signe
AU - Grimshaw, Jeremy
AU - Kremer, Leontien
AU - Santesso, Nancy
AU - Stacey, Dawn
AU - Treweek, Shaun
AU - Armstrong, Melissa
AU - Gagliardi, Anna
AU - Hill, Sophie
AU - Légaré, France
AU - Ryan, Rebecca
AU - Vandvik, Per
AU - van der Weijden, Trudy
N1 - Availability of data and material All data processed or analysed during the current study are included in this published article. Funding This meeting was carried out as part of research funded by ZonMw, the Netherlands organization for health research and development, Development of patient information and patient decision aids alongside clinical practice guidelines, project number 0-83900−98-350, and as part of the PhD-research of DD, made possible by the Knowledge Institute of Medical Specialists, ZonMw and Maastricht University/School for Care and Public Health Research Institute CAPHRI. Additional funding was acquired for travel and lodging expenses of the participants. The National Institute for the Quality of Health Care and the Knowledge Institute of Medical Specialists each contributed 2,500 Euros, and Maastricht University contributed 5,000 Euros.
PY - 2019/5/4
Y1 - 2019/5/4
N2 - ObjectivePatient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.MethodsA face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.ResultsA conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.ConclusionThe framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.Practice implicationsThe framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.
AB - ObjectivePatient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.MethodsA face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.ResultsA conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.ConclusionThe framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.Practice implicationsThe framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.
KW - framework
KW - knowledge
KW - toold
KW - (shared) decision-making
KW - patient education
KW - communication
UR - http://www.mendeley.com/research/conceptual-framework-patientdirected-knowledge-tools-support-patientcentred-care-results-evidenceinf
U2 - 10.1016/j.pec.2019.05.003
DO - 10.1016/j.pec.2019.05.003
M3 - Article
JO - Patient Education and Counseling
JF - Patient Education and Counseling
SN - 0738-3991
ER -