Abstract
Objective
Patient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.
Methods
A face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.
Results
A conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.
Conclusion
The framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.
Practice implications
The framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.
Patient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.
Methods
A face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.
Results
A conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.
Conclusion
The framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.
Practice implications
The framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.
| Original language | English |
|---|---|
| Pages (from-to) | 1898-1904 |
| Number of pages | 7 |
| Journal | Patient Education and Counseling |
| Volume | 102 |
| Issue number | 10 |
| Early online date | 4 May 2019 |
| DOIs | |
| Publication status | Published - Oct 2019 |
Bibliographical note
Availability of data and materialAll data processed or analysed during the current study are included in this published article.
Funding
This meeting was carried out as part of research funded by ZonMw, the Netherlands organization for health research and development, Development of patient information and patient decision aids alongside clinical practice guidelines, project number 0-83900−98-350, and as part of the PhD-research of DD, made possible by the Knowledge Institute of Medical Specialists, ZonMw and Maastricht University/School for Care and Public Health Research Institute CAPHRI.
Additional funding was acquired for travel and lodging expenses of the participants. The National Institute for the Quality of Health Care and the Knowledge Institute of Medical Specialists each contributed 2,500 Euros, and Maastricht University contributed 5,000 Euros.
Keywords
- framework
- knowledge
- toold
- (shared) decision-making
- patient education
- communication
- Patient education
- (Shared) decision-making
- Tools
- Knowledge
- Framework
- Communication