A conceptual framework for patient-directed knowledge tools to support patient-centred care

Results from an evidence-informed consensus meeting

Dunja Dreesens (Corresponding Author), Anne Stiggelbout, Thomas Agoritsas, Glyn Elwyn, Signe Flottorp, Jeremy Grimshaw, Leontien Kremer, Nancy Santesso, Dawn Stacey, Shaun Treweek, Melissa Armstrong, Anna Gagliardi, Sophie Hill, France Légaré, Rebecca Ryan, Per Vandvik, Trudy van der Weijden

Research output: Contribution to journalArticle

Abstract

Objective
Patient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.

Methods
A face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.

Results
A conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.

Conclusion
The framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.

Practice implications
The framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.
Original languageEnglish
Pages (from-to)1898-1904
Number of pages7
JournalPatient Education and Counseling
Volume102
Issue number10
Early online date4 May 2019
DOIs
Publication statusPublished - Oct 2019

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Patient-Centered Care
Consensus
Self Care
Decision Making

Keywords

  • framework
  • knowledge
  • toold
  • (shared) decision-making
  • patient education
  • communication
  • Patient education
  • (Shared) decision-making
  • Tools
  • Knowledge
  • Framework
  • Communication

ASJC Scopus subject areas

  • Medicine(all)

Cite this

A conceptual framework for patient-directed knowledge tools to support patient-centred care : Results from an evidence-informed consensus meeting. / Dreesens, Dunja (Corresponding Author); Stiggelbout, Anne; Agoritsas, Thomas; Elwyn, Glyn; Flottorp, Signe; Grimshaw, Jeremy; Kremer, Leontien; Santesso, Nancy; Stacey, Dawn; Treweek, Shaun; Armstrong, Melissa; Gagliardi, Anna; Hill, Sophie; Légaré, France; Ryan, Rebecca; Vandvik, Per; van der Weijden, Trudy.

In: Patient Education and Counseling, Vol. 102, No. 10, 10.2019, p. 1898-1904.

Research output: Contribution to journalArticle

Dreesens, D, Stiggelbout, A, Agoritsas, T, Elwyn, G, Flottorp, S, Grimshaw, J, Kremer, L, Santesso, N, Stacey, D, Treweek, S, Armstrong, M, Gagliardi, A, Hill, S, Légaré, F, Ryan, R, Vandvik, P & van der Weijden, T 2019, 'A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting', Patient Education and Counseling, vol. 102, no. 10, pp. 1898-1904. https://doi.org/10.1016/j.pec.2019.05.003
Dreesens, Dunja ; Stiggelbout, Anne ; Agoritsas, Thomas ; Elwyn, Glyn ; Flottorp, Signe ; Grimshaw, Jeremy ; Kremer, Leontien ; Santesso, Nancy ; Stacey, Dawn ; Treweek, Shaun ; Armstrong, Melissa ; Gagliardi, Anna ; Hill, Sophie ; Légaré, France ; Ryan, Rebecca ; Vandvik, Per ; van der Weijden, Trudy. / A conceptual framework for patient-directed knowledge tools to support patient-centred care : Results from an evidence-informed consensus meeting. In: Patient Education and Counseling. 2019 ; Vol. 102, No. 10. pp. 1898-1904.
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abstract = "ObjectivePatient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.MethodsA face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.ResultsA conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.ConclusionThe framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.Practice implicationsThe framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.",
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AU - Elwyn, Glyn

AU - Flottorp, Signe

AU - Grimshaw, Jeremy

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AU - Vandvik, Per

AU - van der Weijden, Trudy

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N2 - ObjectivePatient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.MethodsA face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.ResultsA conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.ConclusionThe framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.Practice implicationsThe framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.

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