A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting

Dunja Dreesens; Anne Stiggelbout; Thomas Agoritsas; Glyn Elwyn; Signe Flottorp; Jeremy Grimshaw; Leontien Kremer; Nancy Santesso; Dawn Stacey; Shaun Treweek; Melissa Armstrong; Anna Gagliardi; Sophie Hill; France Légaré; Rebecca Ryan; Per Vandvik; Trudy van der Weijden

doi:10.1016/j.pec.2019.05.003

A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting

Dunja Dreesens (Corresponding Author), Anne Stiggelbout, Thomas Agoritsas, Glyn Elwyn, Signe Flottorp, Jeremy Grimshaw, Leontien Kremer, Nancy Santesso, Dawn Stacey, Shaun Treweek, Melissa Armstrong, Anna Gagliardi, Sophie Hill, France Légaré, Rebecca Ryan, Per Vandvik, Trudy van der Weijden

Research output: Contribution to journal › Article › peer-review

4 Citations (Scopus)

1 Downloads (Pure)

Abstract

Objective
Patient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.

Methods
A face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.

Results
A conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.

Conclusion
The framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.

Practice implications
The framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.

Original language	English
Pages (from-to)	1898-1904
Number of pages	7
Journal	Patient Education and Counseling
Volume	102
Issue number	10
Early online date	4 May 2019
DOIs	https://doi.org/10.1016/j.pec.2019.05.003
Publication status	Published - Oct 2019

Keywords

framework
knowledge
toold
(shared) decision-making
patient education
communication
Patient education
(Shared) decision-making
Tools
Knowledge
Framework
Communication

Access to Document

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Accepted Manuscript
© 2019. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0
Accepted author manuscript, 474 KBLicence: CC BY-NC-ND

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Dreesens, D., Stiggelbout, A., Agoritsas, T., Elwyn, G., Flottorp, S., Grimshaw, J., Kremer, L., Santesso, N., Stacey, D., Treweek, S., Armstrong, M., Gagliardi, A., Hill, S., Légaré, F., Ryan, R., Vandvik, P., & van der Weijden, T. (2019). A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting. Patient Education and Counseling, 102(10), 1898-1904. https://doi.org/10.1016/j.pec.2019.05.003

A conceptual framework for patient-directed knowledge tools to support patient-centred care : Results from an evidence-informed consensus meeting. / Dreesens, Dunja (Corresponding Author); Stiggelbout, Anne; Agoritsas, Thomas; Elwyn, Glyn; Flottorp, Signe; Grimshaw, Jeremy; Kremer, Leontien; Santesso, Nancy; Stacey, Dawn; Treweek, Shaun; Armstrong, Melissa; Gagliardi, Anna; Hill, Sophie; Légaré, France; Ryan, Rebecca; Vandvik, Per; van der Weijden, Trudy.

In: Patient Education and Counseling, Vol. 102, No. 10, 10.2019, p. 1898-1904.

Research output: Contribution to journal › Article › peer-review

Dreesens, D, Stiggelbout, A, Agoritsas, T, Elwyn, G, Flottorp, S, Grimshaw, J, Kremer, L, Santesso, N, Stacey, D, Treweek, S, Armstrong, M, Gagliardi, A, Hill, S, Légaré, F, Ryan, R, Vandvik, P & van der Weijden, T 2019, 'A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting', Patient Education and Counseling, vol. 102, no. 10, pp. 1898-1904. https://doi.org/10.1016/j.pec.2019.05.003

Dreesens, Dunja ; Stiggelbout, Anne ; Agoritsas, Thomas ; Elwyn, Glyn ; Flottorp, Signe ; Grimshaw, Jeremy ; Kremer, Leontien ; Santesso, Nancy ; Stacey, Dawn ; Treweek, Shaun ; Armstrong, Melissa ; Gagliardi, Anna ; Hill, Sophie ; Légaré, France ; Ryan, Rebecca ; Vandvik, Per ; van der Weijden, Trudy. / A conceptual framework for patient-directed knowledge tools to support patient-centred care : Results from an evidence-informed consensus meeting. In: Patient Education and Counseling. 2019 ; Vol. 102, No. 10. pp. 1898-1904.

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title = "A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting",

abstract = "ObjectivePatient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study{\textquoteright}s aim was to develop a conceptual framework of patient-directed knowledge tool types.MethodsA face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.ResultsA conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools{\textquoteright} purposes and the second focuses on the tools{\textquoteright} core elements.ConclusionThe framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.Practice implicationsThe framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.",

keywords = "framework, knowledge, toold, (shared) decision-making, patient education, communication, Patient education, (Shared) decision-making, Tools, Knowledge, Framework, Communication",

author = "Dunja Dreesens and Anne Stiggelbout and Thomas Agoritsas and Glyn Elwyn and Signe Flottorp and Jeremy Grimshaw and Leontien Kremer and Nancy Santesso and Dawn Stacey and Shaun Treweek and Melissa Armstrong and Anna Gagliardi and Sophie Hill and France L{\'e}gar{\'e} and Rebecca Ryan and Per Vandvik and {van der Weijden}, Trudy",

note = "Availability of data and material All data processed or analysed during the current study are included in this published article. Funding This meeting was carried out as part of research funded by ZonMw, the Netherlands organization for health research and development, Development of patient information and patient decision aids alongside clinical practice guidelines, project number 0-83900−98-350, and as part of the PhD-research of DD, made possible by the Knowledge Institute of Medical Specialists, ZonMw and Maastricht University/School for Care and Public Health Research Institute CAPHRI. Additional funding was acquired for travel and lodging expenses of the participants. The National Institute for the Quality of Health Care and the Knowledge Institute of Medical Specialists each contributed 2,500 Euros, and Maastricht University contributed 5,000 Euros.",

year = "2019",

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doi = "10.1016/j.pec.2019.05.003",

language = "English",

volume = "102",

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T2 - Results from an evidence-informed consensus meeting

AU - Dreesens, Dunja

AU - Stiggelbout, Anne

AU - Agoritsas, Thomas

AU - Elwyn, Glyn

AU - Flottorp, Signe

AU - Grimshaw, Jeremy

AU - Kremer, Leontien

AU - Santesso, Nancy

AU - Stacey, Dawn

AU - Treweek, Shaun

AU - Armstrong, Melissa

AU - Gagliardi, Anna

AU - Hill, Sophie

AU - Légaré, France

AU - Ryan, Rebecca

AU - Vandvik, Per

AU - van der Weijden, Trudy

N1 - Availability of data and material All data processed or analysed during the current study are included in this published article. Funding This meeting was carried out as part of research funded by ZonMw, the Netherlands organization for health research and development, Development of patient information and patient decision aids alongside clinical practice guidelines, project number 0-83900−98-350, and as part of the PhD-research of DD, made possible by the Knowledge Institute of Medical Specialists, ZonMw and Maastricht University/School for Care and Public Health Research Institute CAPHRI. Additional funding was acquired for travel and lodging expenses of the participants. The National Institute for the Quality of Health Care and the Knowledge Institute of Medical Specialists each contributed 2,500 Euros, and Maastricht University contributed 5,000 Euros.

PY - 2019/10

Y1 - 2019/10

N2 - ObjectivePatient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study’s aim was to develop a conceptual framework of patient-directed knowledge tool types.MethodsA face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.ResultsA conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools’ purposes and the second focuses on the tools’ core elements.ConclusionThe framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.Practice implicationsThe framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job.

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