Biographical disruption, abruption and repair in the context of Motor Neurone Disease

L Locock, Sue Ziebland, Carol Dumelow

Research output: Contribution to journalArticle

68 Citations (Scopus)

Abstract

Concepts of biographical disruption and repair have been widely applied to chronic illness, but not terminal illness. This paper examines the relevance of these concepts to motor neurone disease (MND), a progressive neurological condition characterised by loss of mobility, speech and ability to breathe or swallow. Survival is usually between two and five years, and some die within a few months. The condition thus lies at the boundary between chronic and terminal illness. Narrative interviews were conducted with 35 people living with MND and 11 family carers; analysis explored how people constructed their accounts as well as what they said. As well as accounts of biographical disruption, we identified a distinctive sense that the diagnosis is a 'death sentence' and life is already over, which we term 'biographical abruption'. We also found instances of biographical repair, as participants sought to make sense of their remaining life, restore normality and control, and find new meaning and identity.
Original languageEnglish
Pages (from-to)1043-1058
Number of pages16
JournalSociol Health Illn
Volume31
Issue number7
Early online date29 Jul 2009
DOIs
Publication statusPublished - Nov 2009

Fingerprint

illness
Disease
narrative interview
normality
chronic illness
death
ability

Cite this

Biographical disruption, abruption and repair in the context of Motor Neurone Disease. / Locock, L; Ziebland, Sue; Dumelow, Carol.

In: Sociol Health Illn, Vol. 31, No. 7, 11.2009, p. 1043-1058.

Research output: Contribution to journalArticle

Locock, L ; Ziebland, Sue ; Dumelow, Carol. / Biographical disruption, abruption and repair in the context of Motor Neurone Disease. In: Sociol Health Illn. 2009 ; Vol. 31, No. 7. pp. 1043-1058.
@article{bd6fb2ea2b844110bff8e64e1765cb93,
title = "Biographical disruption, abruption and repair in the context of Motor Neurone Disease",
abstract = "Concepts of biographical disruption and repair have been widely applied to chronic illness, but not terminal illness. This paper examines the relevance of these concepts to motor neurone disease (MND), a progressive neurological condition characterised by loss of mobility, speech and ability to breathe or swallow. Survival is usually between two and five years, and some die within a few months. The condition thus lies at the boundary between chronic and terminal illness. Narrative interviews were conducted with 35 people living with MND and 11 family carers; analysis explored how people constructed their accounts as well as what they said. As well as accounts of biographical disruption, we identified a distinctive sense that the diagnosis is a 'death sentence' and life is already over, which we term 'biographical abruption'. We also found instances of biographical repair, as participants sought to make sense of their remaining life, restore normality and control, and find new meaning and identity.",
author = "L Locock and Sue Ziebland and Carol Dumelow",
year = "2009",
month = "11",
doi = "10.1111/j.1467-9566.2009.01176.x",
language = "English",
volume = "31",
pages = "1043--1058",
journal = "Sociol Health Illn",
number = "7",

}

TY - JOUR

T1 - Biographical disruption, abruption and repair in the context of Motor Neurone Disease

AU - Locock, L

AU - Ziebland, Sue

AU - Dumelow, Carol

PY - 2009/11

Y1 - 2009/11

N2 - Concepts of biographical disruption and repair have been widely applied to chronic illness, but not terminal illness. This paper examines the relevance of these concepts to motor neurone disease (MND), a progressive neurological condition characterised by loss of mobility, speech and ability to breathe or swallow. Survival is usually between two and five years, and some die within a few months. The condition thus lies at the boundary between chronic and terminal illness. Narrative interviews were conducted with 35 people living with MND and 11 family carers; analysis explored how people constructed their accounts as well as what they said. As well as accounts of biographical disruption, we identified a distinctive sense that the diagnosis is a 'death sentence' and life is already over, which we term 'biographical abruption'. We also found instances of biographical repair, as participants sought to make sense of their remaining life, restore normality and control, and find new meaning and identity.

AB - Concepts of biographical disruption and repair have been widely applied to chronic illness, but not terminal illness. This paper examines the relevance of these concepts to motor neurone disease (MND), a progressive neurological condition characterised by loss of mobility, speech and ability to breathe or swallow. Survival is usually between two and five years, and some die within a few months. The condition thus lies at the boundary between chronic and terminal illness. Narrative interviews were conducted with 35 people living with MND and 11 family carers; analysis explored how people constructed their accounts as well as what they said. As well as accounts of biographical disruption, we identified a distinctive sense that the diagnosis is a 'death sentence' and life is already over, which we term 'biographical abruption'. We also found instances of biographical repair, as participants sought to make sense of their remaining life, restore normality and control, and find new meaning and identity.

U2 - 10.1111/j.1467-9566.2009.01176.x

DO - 10.1111/j.1467-9566.2009.01176.x

M3 - Article

VL - 31

SP - 1043

EP - 1058

JO - Sociol Health Illn

JF - Sociol Health Illn

IS - 7

ER -