If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis

Richard Harding, V. Simms, N. Calanzani, I.J. Higginson, S. Hall, M. Gysels, A. Meñaca, C. Bausewein, L. Deliens, P. Ferreira, F. Toscani, B.A. Daveson, L. Ceulemans, B. Gomes

Research output: Contribution to journalArticlepeer-review

43 Citations (Scopus)

Abstract

Objective: With increasing European cancer deaths, clinicians must manage information regardingpoor prognosis. This study aimed to determine European citizens’preferences, within a scenario ofserious illness such as cancer with less than a year to live, for information disclosure regarding poorprognosis, the likely symptoms and problems, and the care options available, to measure variationsbetween countries and to identify factors associated with preferences.Methods: A population-based cross-national telephone survey using random digit dialling in sevencountries was conducted.Results: Among 9344 respondents, data revealed an international preference (73.9%) to always beinformed in the scenario of having a serious illness such as cancer with less than a year to live. Thisvaried from 67.6% in Italy to 80.7% in Flanders. A minority (21.1%) did not want such informationunless they ask, or at all. People younger than 70 years (OR 0.72, 95% CI 0.62–0.83,p
Original languageEnglish
Pages (from-to)2298-2305
Number of pages8
JournalPsycho-Oncology
Volume22
Early online date18 Mar 2013
DOIs
Publication statusPublished - 18 Mar 2013

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