Quality of integrated chronic disease care in rural South Africa

user and provider perspectives

Soter Ameh, Kerstin Klipstein-Grobusch, Lucia D'Ambruoso, Kathleeen Kahn, Stephen Tollman, F Xavier Gómez-Olivé

Research output: Contribution to journalArticle

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Abstract

The integrated chronic disease management (ICDM) model was introduced as a response to the dual burden of HIV/AIDS and non-communicable diseases (NCDs) in South Africa, one of the first of such efforts by an African Ministry of Health. The aim of the ICDM model is to leverage HIV programme innovations to improve the quality of chronic disease care. There is a dearth of literature on the perspectives of healthcare providers and users on the quality of care in the novel ICDM model. This paper describes the viewpoints of operational managers and patients regarding quality of care in the ICDM model.

In 2013, we conducted a case study of the seven PHC facilities in the rural Agincourt sub-district in northeast South Africa. Focus group discussions (n = 8) were used to obtain data from 56 purposively selected patients ≥18 years. In-depth interviews were conducted with operational managers of each facility and the sub-district health manager. Donabedian’s structure, process and outcome theory for service quality evaluation underpinned the conceptual framework in this study. Qualitative data were analysed, with MAXQDA 2 software, to identify 17 a priori dimensions of care and unanticipated themes that emerged during the analysis.

The manager and patient narratives showed the inadequacies in structure (malfunctioning blood pressure machines and staff shortage); process (irregular prepacking of drugs); and outcome (long waiting times). There was discordance between managers and patients regarding reasons for long patient waiting time which managers attributed to staff shortage and missed appointments, while patients ascribed it to late arrival of managers to the clinics. Patients reported anti-hypertension drug stock-outs (structure); sub-optimal defaulter-tracing (process); rigid clinic appointment system (process). Emerging themes showed that patients reported HIV stigmatisation in the community due to defaulter-tracing activities of home-based carers, while managers reported treatment of chronic diseases by traditional healers and reduced facility-related HIV stigma because HIV and NCD patients attended the same clinic.

Leveraging elements of HIV programmes for NCDs, specifically hypertension management, is yet to be achieved in the study setting in part because of malfunctioning blood pressure machines and anti-hypertension drug stock-outs. This has implications for the nationwide scale up of the ICDM model in South Africa and planning of an integrated chronic disease care in other low- and middle-income countries
Original languageEnglish
Pages (from-to)257-266
Number of pages10
JournalHealth Policy and Planning
Volume32
Issue number2
Early online date1 Sep 2016
DOIs
Publication statusPublished - Mar 2017

Fingerprint

South Africa
Chronic Disease
Disease Management
HIV
Quality of Health Care
Hypertension
Appointments and Schedules
Pharmaceutical Preparations
Blood Pressure
Stereotyping
Health
Focus Groups
Health Personnel
Caregivers
Acquired Immunodeficiency Syndrome
Software
Interviews

Keywords

  • HIV
  • non-communicable diseases (NCDs)
  • integrated chronic disease management
  • quality of care
  • health outcomes
  • primary health care
  • Agincourt study site
  • South Africa

Cite this

Quality of integrated chronic disease care in rural South Africa : user and provider perspectives. / Ameh, Soter; Klipstein-Grobusch, Kerstin; D'Ambruoso, Lucia; Kahn, Kathleeen; Tollman, Stephen; Gómez-Olivé, F Xavier.

In: Health Policy and Planning, Vol. 32, No. 2, 03.2017, p. 257-266.

Research output: Contribution to journalArticle

Ameh, Soter ; Klipstein-Grobusch, Kerstin ; D'Ambruoso, Lucia ; Kahn, Kathleeen ; Tollman, Stephen ; Gómez-Olivé, F Xavier. / Quality of integrated chronic disease care in rural South Africa : user and provider perspectives. In: Health Policy and Planning. 2017 ; Vol. 32, No. 2. pp. 257-266.
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N1 - Acknowledgement This work was supported by (i) Medical Research Council/Wits Rural Public Health and health Transitions Research Unit (Agincourt) South Africa, through the Wellcome Trust, UK (Grant Numbers 058893/Z/99/A, 069683/Z/02/Z); (ii) Fogarty International Centre of the National Institutes of Health fellowship (Grant number 1D43TW008330-01A); and (iii) African Doctoral Dissertation Research Fellowship. The content is solely the responsibility of the authors and does not necessarily represent the official view of the National Institutes of Health and other funders. This paper was facilitated by attending the Wits School of Public Health Thanda Ukubhala writing retreat funded by the Faculty of Health Sciences Research Office. The authors acknowledge the contributions of Chimaraoke Izugbara, Rachel Caesar, Lenore Manderson, Faith Mambulu and Latonya Wilson for writing support. Funding Funding to pay the Open Access publication charges for this article was provided by the Fogarty International Centre of the National Institutes of Health fellowship (Grant number 1D43TW008330-01A). This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com

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AB - The integrated chronic disease management (ICDM) model was introduced as a response to the dual burden of HIV/AIDS and non-communicable diseases (NCDs) in South Africa, one of the first of such efforts by an African Ministry of Health. The aim of the ICDM model is to leverage HIV programme innovations to improve the quality of chronic disease care. There is a dearth of literature on the perspectives of healthcare providers and users on the quality of care in the novel ICDM model. This paper describes the viewpoints of operational managers and patients regarding quality of care in the ICDM model.In 2013, we conducted a case study of the seven PHC facilities in the rural Agincourt sub-district in northeast South Africa. Focus group discussions (n = 8) were used to obtain data from 56 purposively selected patients ≥18 years. In-depth interviews were conducted with operational managers of each facility and the sub-district health manager. Donabedian’s structure, process and outcome theory for service quality evaluation underpinned the conceptual framework in this study. Qualitative data were analysed, with MAXQDA 2 software, to identify 17 a priori dimensions of care and unanticipated themes that emerged during the analysis.The manager and patient narratives showed the inadequacies in structure (malfunctioning blood pressure machines and staff shortage); process (irregular prepacking of drugs); and outcome (long waiting times). There was discordance between managers and patients regarding reasons for long patient waiting time which managers attributed to staff shortage and missed appointments, while patients ascribed it to late arrival of managers to the clinics. Patients reported anti-hypertension drug stock-outs (structure); sub-optimal defaulter-tracing (process); rigid clinic appointment system (process). Emerging themes showed that patients reported HIV stigmatisation in the community due to defaulter-tracing activities of home-based carers, while managers reported treatment of chronic diseases by traditional healers and reduced facility-related HIV stigma because HIV and NCD patients attended the same clinic.Leveraging elements of HIV programmes for NCDs, specifically hypertension management, is yet to be achieved in the study setting in part because of malfunctioning blood pressure machines and anti-hypertension drug stock-outs. This has implications for the nationwide scale up of the ICDM model in South Africa and planning of an integrated chronic disease care in other low- and middle-income countries

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KW - health outcomes

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