Why do people present late with advanced glaucoma? A qualitative interview study

Maria Prior, Jill J Francis, Augusto Azuara-Blanco, Nitin Anand, Jennifer M Burr, Glaucoma screening Platform Study group

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Abstract

Objective To explore the presentation behaviours and pathways to detection of adults who first presented to UK hospital eye services with severe glaucoma.

Design Semistructured interviews, based on models of diagnostic delay, to obtain a descriptive self-reported account of when and how participants’ glaucoma was detected.

Results 11 patients participated (five in Aberdeen, six in Huddersfield). Four participants reported that the optometry appointment at which their glaucoma was detected was their first ever eye test or their first for over 10 years. Seven participants reported attending regular routine optometrist appointments. Their self-reported experiences and pathways to detection describe a variety of missed detection opportunities and delayed referral and treatment.

Conclusions The qualitative data suggest that late detection of glaucoma can result from delays at the patient level but, although based on a small sample, delays also occurred at the healthcare provider (system) level both in terms of accuracy of case detection and effective referral. We suggest that current attempts to address the significant burden of over-referral of glaucoma suspects to hospital eye services (a large proportion of which are false positives) must also focus on the issue of false negatives and on reducing missed detection and service delays.
Original languageEnglish
Pages (from-to)1574-1578
Number of pages5
JournalBritish Journal of Ophthalmology
Volume97
Issue number12
Early online date24 Sep 2013
DOIs
Publication statusPublished - Dec 2013

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  • Cite this

    Prior, M., Francis, J. J., Azuara-Blanco, A., Anand, N., Burr, J. M., & Glaucoma screening Platform Study group (2013). Why do people present late with advanced glaucoma? A qualitative interview study. British Journal of Ophthalmology, 97(12), 1574-1578. https://doi.org/10.1136/bjophthalmol-2013-303813